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How Do I Cope With My Worst Days?

I would really like to know how other people cope with their bad days.

It’s something I’m struggling with.

For me, I’ve drastically improved at recognizing my symptoms and taking the necessary measures to deal with them, but I still struggle with it mentally.

Today was one of those days

I woke up at 9 a.m., which most people would assume was a good night sleep. In reality, the night was a struggle, so I didn’t sleep well. As a result, when I woke up, I struggled through breakfast and then fell asleep again because I was feeling to awful.

By struggling through breakfast, I mean it took me over an hour to make and consume a small smoothie. It felt outlandish.

As a result, my day didn’t really start until 1 p.m. It was a day I had planned to do a lot of things, but I had to adjust and accept that I would only get about halfway through my to-do list.

My bad days

On bad days, I’m very slow. I’m normally a high-energy fast-paced guy, but when my symptoms are flaring it’s like I’m moving through molasses. It’s like I’m always stuck in second gear.

I’m also exhausted. My sleep pattern becomes wake up to sleep again and I spend more than 12 hours in bed, it feels like I’m wasting my day. It’s so unlike me. I am normally so energetic I can’t even drink coffee more than a couple days per week because if I do I’ll be bouncing off the walls.

Lack of cognitive function is the most frustrating part of my bad days. Colloquially known as brain fog, I just lose the ability to think properly. Today it manifested itself in silence when my girlfriend would ask me questions.

“Hello? Are you going to answer me?”

I wasn’t trying to ignore her, I just genuinely could not think of the words to respond. It was like a silent stutter.

I’m an emotional person by nature, so whenever days like this occur, I get extremely frustrated. All that others see is me getting increasingly angry or grumpy, depending on the day, and I find it so hard to explain.

So, I’m left wondering: what do others do to cope during bad days?

For me, I find success in coping between bad days. As a musician, I think my playing has gotten better lately because I have a lot of pent up emotion to pour into my songs. When I go for a bike ride or hike, I have a lot of added inspiration to power me up the big hills.

However, when the symptoms are flaring up my ingrained coping mechanisms aren’t helpful. I’m either feeling too unwell to do any of them or when I try to do them my abilities are so compromised that it only augments my frustrations.

So, if you have any ideas please chime in. Leave a comment and let me know how you cope on your bad days. I’m open and willing to try new things because my current strategy of trying to weather the storm and just wait it out isn’t working for me.

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