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What does a flare look like for you?

Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had small joint problems. For the past 3 years or so I have been having events that pretty much disable me from doing most activities. I will start to get a little pain and stiffness in my lower back and then suddenly, overnight, I will wake up and barely be able to move. It sometimes takes 10 minutes to get out of bed. I can't put on socks or wear anything but shoes that slip on. Getting up and sitting down are very difficult. The last "event" I had lasted a little over a week and I was unable to stand up straight without support and/or walk standing up straight. It was the worst. I had been attributing these back events to other reasons, since I was told 10 years ago that based on my blood test results that I didn't have ankylosing spondylitis, but am now wondering if they might be a flare. Anyone else have similar experiences?

  1. It starts about before a day in the morning my legs get stiff I can hardly get out of the bed and my hips are hurting


    1. I have my morning medicine on my nightstand and take it and hour before I get out of bed. This help some but nothing helps if you don't get up and move. I do have days where I can't get out of bed even with my meds then I use the heating pad or tens unit or call the doctor for steroids. Hope it helps for you!!

    2. Thanks for sharing! These are simple tips worth trying! Thank you for being part of the AxialSpondyloarthritis.net community. All the best, Kathy (Team member)

  2. I have all of the above plus my voice is affected
    becoming hoarse and croaky.

    1. I am so sorry you are going through all that. Hoping you are doing well today! All the best, Kathy (Team member)

  3. Pain in lower back and hips. Increased stiffness all day

    1. ,
      Thanks so much for sharing.
      How long does this usually last?
      ~Doreen (Team Member)

  4. My flares come in many forms. The most recent flare has been quite a monster. Sausage digits anyone? Well, my fingers and toes swelled up to mimic one's favorite breakfast sausages. Enough said.

    1. ,
      Great description...and one many of us can relate to.
      Doreen (Team Member)

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