My Experience of Trying Acupuncture For My ASI’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I... By Joy Tilbrook3 min readBookmark for later
The Never Ending FlareI'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain,... By Nicky Flikas2 min readBookmark for later
Why Advocating for Yourself Feels Difficult, Especially With FamilyFor those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my... By Tomesha Campbell2 min readBookmark for later
My Experience of Trying Acupuncture For My ASI’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I... By Joy Tilbrook3 min readBookmark for later
The Never Ending FlareI'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain,... By Nicky Flikas2 min readBookmark for later
Why Advocating for Yourself Feels Difficult, Especially With FamilyFor those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my... By Tomesha Campbell2 min readBookmark for later
My Experience of Trying Acupuncture For My ASI’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I... By Joy Tilbrook3 min readBookmark for later
The Never Ending FlareI'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain,... By Nicky Flikas2 min readBookmark for later
Why Advocating for Yourself Feels Difficult, Especially With FamilyFor those grappling with Axial Spondyloarthritis (axSpA), moments with family can quickly become challenging encounters that leave us frustrated and misunderstood. I vividly recall a recent holiday visit with my... By Tomesha Campbell2 min readBookmark for later
My Biologic Keeps My Flares AwayI got a reminder this summer about how effective my biologic is at keeping my flares at bay. To give a bit of context to this story, I have been... By Julie Vallortigara3 min readBookmark for laterReactions0reactionsComments0 comments
Insurance is Crucial for Patients With AxSpAI was informed I had a gene mutation a few months ago that could contribute to more severe health complications down the line. After speaking with my healthcare team, we... By Tomesha Campbell3 min readBookmark for laterReactions0reactionsComments0 comments
I Am Not My DiseaseThere have been, are, and will be days when the pain feels absolutely bone-shattering and soul-crushing. Trying to control the pain is like being in quicksand - the more one...Bookmark for laterReactions0reactionsComments10 comments
How do you stay comfortable when you're uncomfortable?If you suffer from AS, then you probably know the struggle of always trying to make yourself comfortable in almost every situation. What items or methods do you use to...Bookmark for laterReactions0reactionsComments14 replies