What does a flare look like for you?
Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had small joint problems. For the past 3 years or so I have been having events that pretty much disable me from doing most activities. I will start to get a little pain and stiffness in my lower back and then suddenly, overnight, I will wake up and barely be able to move. It sometimes takes 10 minutes to get out of bed. I can't put on socks or wear anything but shoes that slip on. Getting up and sitting down are very difficult. The last "event" I had lasted a little over a week and I was unable to stand up straight without support and/or walk standing up straight. It was the worst. I had been attributing these back events to other reasons, since I was told 10 years ago that based on my blood test results that I didn't have ankylosing spondylitis, but am now wondering if they might be a flare. Anyone else have similar experiences?
wow, same as stated here !
Is it possible to have flares 24/7? Kinda serious!
- I believe it's possible. I had a 4-5 year flare that resulted in diagnosis. It was a challenging time, and I empathize with anyone going through something similar. I've also read many accounts in the community where extended flares are making them miserable. Are you having a long flare currently? I hope you have support and are being treated. Should it continue I would check in with your treating physician / rheumy to see if there's an adjustment to make to your treatment plan. They may be able to suggest changes that can help alleviate the pain and debilitation associated with spondyloarthritis symptoms. Hang in there - we understand. Warmly - Rebecca (team member)
This is exactly how I've felt the last 4-5 weeks. I couldn't figure out what was happening
This is amazingly helpful!- Many within the community share similar feelings. I'm relieved you've pinpointed the cause and are receiving suitable treatment concerning your flare. Understanding how others navigate the journey of spondyloarthritis is crucial. Each person's experience is unique, and strategies that work for one may benefit others. Support and advocacy are key for both those experiencing symptoms and yourself. I hope you have a strong support network and find ways to relieve your pain and debility/discomfort. Warm regards, Rebecca (team member)
Waking and the dread of moving. Just pul covers over my head and let the day proceed without me. Tomorrow will be better.
I hope you are feeling much better since posting, and that you have been able to throw the covers off and manage to get up and going. How are you feeling today? Wishing less pain and better days ahead. Regards - Rebecca (team member)
