Gene Testing My Children for ASLike the majority of people with ankylosing spondylitis, I tested positive for the gene HLA-B27. Following my diagnosis I often wondered about...reactions3comments
Re-Thinking a Career That Works for ASFinding a job that works for AS can be hard. I recently had a coaching client who realized the job he once...reactions5comments
When Friendships Don’t Survive Your Chronic IllnessLil and I met at work in our early 20s. She was hilarious and outrageous and we clicked instantly. Going anywhere with...reactions6comments
Discovering a Different Version of Myself With ASDeveloping AS changed my life in in all kinds of ways. Things I had enjoyed were now off-limits. Plans I’d made were...reactions1comment
How to Organize Your Medical RecordsOne aspect of self-management we don’t often hear about is how to store and organize the information we receive in relation to...reactions1comment
My Experience With an Ankylosing Spondylitis Self-Management CourseBack in the freedom of our pre-Covid world I was lucky enough to attend a specialist self-management course for ankylosing spondylitis at...reactions2comments
Remission From Ankylosing Spondylitis: The Search for a UnicornIn something of a weird coincidence, my step-father also had ankylosing spondylitis. Russ died tragically in a car accident several years before...reactions8comments
Preparing for Imaging Appointments With Ankylosing SpondylitisPart of life with ankylosing spondylitis includes scans to check for bone change and progression. My disease activity over recent years has...reactions7comments
My First Time Attending an AS Support GroupThis month I attended an online meet-up of my local AS support group. It was the first time I’ve ever done something...reactions1comment
Making Camping Trips Doable With ASOne of our family’s favorite pastimes has always been going away camping. I’ve missed quite a few of those trips over the...reactions2comments
Making Space for Self CompassionBeing kind to yourself is important when you have a chronic illness like ankylosing spondylitis. Some days self-compassion means cutting myself some...reactionscomments
How Goal Setting Can Help Us Self-Manage Chronic IllnessAs a health coach most of my time is spent working with people on making positive behavior change. Following a diagnosis like...reactions4comments
The Pain That Wasn’t ASIt had been a year without a flare, the first I could remember in more than a decade. The years of fine...reactions8comments
Experiments While I’m Waiting for a CureDo you remember the first question you asked when you were told you had AS? For me it was immediate - “Is...reactions4comments
Tips for Managing at Work With AxSpaSome of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent...reactions1comment
Getting Back to Walking With ASI can remember a time when I took walking for granted. I didn’t give my legs a second thought throughout childhood, or...reactions5comments
Using Fasting to Help With My AxSpaEditor's note: Fasting should not be used by certain people, such as those who have diabetes, a history of disordered eating, or...reactions3comments
My Experience With Low Dose Naltrexone for ASFor many years now my approach to living well with ankylosing spondylitis has involved a healthy dose of curiosity and a willingness...reactions5comments
How Regular Stretching Relieves My AS Pain“Be sure to stretch” was one of the few pieces of advice I walked away with when I was told I had...reactions6comments
Housework Hacks With Ankylosing SpondylitisOne of the things I really dislike when I’m in an AxSpa flare is how messy my house can get. I’m definitely...reactions13comments
