Ali Long

Last updated: May 2023

Axial Spondyloarthritis Community Advocate Ali LongHello! My name is Ali, I am a 23-year-old student studying Social Care Work. I live by the sea in the south of Ireland.

Throughout my life I have always been tired, I thought this was normal. I thought every teenage girl felt this way. I was wrong.

I have suffered from mild back pain on and off for years, mostly in my tailbone. I always put this down to a car crash I was in a few years back. I was wrong.

Last year the pain became debilitating. I was pretty much bed-bound for about 3 months due to the pain and fatigue!

I received my diagnosis in June of 2020. I was incredibly lucky to get my diagnosis within a year as this is not always the case. This is when things changed for me. I was finally heard, finally, someone believed me.

Researching my illness and being in contact with the spoonie community, through my Instagram page anky_as_spanky really helped me to cope.

I will speak more about my diagnosis, my illness, and everything AS related in my articles.

I am looking forward to us sharing our journeys together.

Click here to read all of Ali’s articles on

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