America with a graph behind it for the axial spondyloarthritis in America Survey

Axial Spondyloarthritis In America: What Is That?

It is so much more than just back pain. It can be back pain, yes, but also stomach issues, eye inflammation, fatigue ... the list goes on. To learn more about living every day with axial spondyloarthritis (AxSpA), we conduct an annual survey.

What is the survey about?

The survey covers basics like diagnosis and treatment experiences, but also dives into the nitty-gritty. We want to learn more about the emotional impact and day-to-day challenges of managing AxSpA.

We are especially interested in:

  • Your treatment journey
  • How long it took you to get diagnosed
  • What your symptoms are
  • The feelings that come with this chronic condition

Why should I take the survey?

Each person who takes the survey contributes to AxSpA awareness and helps others with AxSpA feel less alone. Sharing can reveal how different people's journeys with AxSpA are the same – and how they are different.

What will the survey ask me?

The survey will ask about:

  • Diagnosis
  • Symptoms
  • Symptom management
  • Quality of life and relationships
  • Healthcare engagement
  • Treatment awareness and experience

We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your browser and return when you are able. You can resume where you left off.

How does Health Union use the In America survey data?

Survey responses help Health Union and our partners better understand the AxSpA community. All responses are kept confidential and reported only in total. This means your specific answers will not be reported. Responses will become property of Health Union, LLC.

What happens after I take the survey?

After the survey closes each year, the editorial team at AxialSpondyloarthritis.net takes your responses and creates an infographic. We use this infographic to highlight important findings from the survey.

But that is not all! Throughout the year, we publish articles based on learnings from the survey. We hope that this survey-driven content helps those affected by AxSpA connect with others who have walked the same path.

One voice may seem like it will not make a difference. But each voice can change how others perceive life with AxSpA. Each can bring comfort to someone coping with a diagnosis.

Still have questions? Comment below, or email us at contact@axialspondyloarthritis.net for more information.

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