How Ankylosing Spondylitis Changed My Life
Last updated: May 2022
I guess I am the first one from India to write my story on this forum. Hope all the AS warriors are doing well and if not, I hope that everything gonna be fine soon. I would start my story at the time when I was 20. I remember after sitting for a long time, I took some time to stand up straight. Sometimes when I use to keep my leg on the floor, it used to pain a lot. Sometimes in the middle of the night, I would wake up with severe pain, unable to move my body even a little and it used to feel like I will die the next minute. And I had no answer to this. I used to think that this is happening to me because I am not doing exercise and eating more junk. I used to buy painkillers from the pharmacy and eat it every day.
Time passed and my pain started increasing, from once a month to once a week to every day, the pain felt like hell. Sometimes I thought it was sciatica and sometimes slip disc but I didn't know what was going to happen further, I was doing my MBA at the time when the pain started happening every day. I started missing lectures due to pain and started avoiding plans because of fatigue. And I had no answer why I don't feel like doing anything.
One cold night in January 2020, the pain was so severe that I wasn't able to move a bit. And that pain continued for a week. I was locked in my apartment alone. It took me 5 mins to go to my door from my bed to take the food parcels. And that was the time I was sure that Man, this shit is something serious. Since I had no idea what rheumatology is, I took an appointment with an orthopedic, he ran a lot of tests including all the blood tests, X- rays, HLA B27, CRP, ERS. That was the first time I heard these terms but now I have to go through these terms every 6 months.
All the reports came and he told me, "Boy, you have ankylosing spondylitis." I asked him to repeat that since I didn't understand that word. He told me, "It's ankylosing spondylitis, and it's a type of arthritis." Since I was hearing it for the first time, I asked him, "so it will take my life? Because my pain feels like that daily." He told me no and that the pain feels like life-threatening but it is not. He said, "We can control this through medications and exercise and you can lead a normal life." I had no idea whether to be happy that I got a name for my pain or to be sad because I have to live my whole life with this. This was just the time when I got the name to my pain and the next 2 years were like hell for me. I understood how bad AS can be and how much it can affect our life.
Thank you and See you in part 2, Until then Good Bye.
Have you ever had to take a leave of absence from work due to your symptoms?
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