Life Has Flipped Upside Down
Last updated: October 2023
I'm a single mother of 2 boys. Before my diagnosis I worked as a full time carer for the elderly 8 days on to get 2 off. I loved everything about my job, my residents at the carehome, my colleagues. It was very rewarding emotionally. I started experiencing back pain at work.
Thought nothing of it and continued for 6 months back and forth to the doctor being on every opioid possible for nothing to even touch the pain. Passed from pillar to post. One day at work I had to do a controlled fall with a resident. After this. The next day, I couldn't walk. From then on my symptoms of fatigue settled in. I couldn't physically make it to the toilet some days. I was in bed for a good 3 months before I felt better and the doctors finally decided to scan me and send me for bloods. Finally after 9 months of pain a few in bed I finally had answers.
Rheumatology got in contact and after 11 months of life changing symptoms, feeling like no one would or could believe me. I was diagnosed with AS put on amgevita 40mg injections. I had to stop all other meds due to a gastrobleed. I'm struggling g mentally, emotionally and physically. 1 of my sons has went to live with his dad to help me. My other son who is 7 helps me with my medication, injections he knows mummy is always tired and some days we don't make it to school. I went from a fun loving carer, mother to someone who spends 20hours in bed. My pain and AS I feel isn't managed just yet. I'm 4 months into my journey now and I'm still struggling. I'm looking for the light at the end of the tunnel! It's there. Just reaching it is the problem.
Do you notice worsening flares in colder weather?