New Diagnosis With Ankylosing Spondylitis
Last updated: September 2023
I was just recently diagnosed with AS this week. I'm 24 soon to be 25, I've had symptoms since I was 13 but it feels as long as I can remember.
My doctors in the last state I lived in read my scans wrong and so to me I'm frustrated because I could have been treated in November and most likely be feeling something from the tnf blockers by now?
I've tried every anti inflammatory I can think of muscle relaxers, pain meds. Nothing helps. I'm getting so tired of my job lately I love what I do more than anything because I've been doing it for 8 years. I work at Starbucks and it's physically demanding.
My boss has been great this last week as I'm understanding. It's just really hard for me to find my own physical limitations. So I always end up over doing it and am in tears every night from the pain it's so depressing.
How do you know you're over doing it? When I'm moving I feel good but when I stop it's to late to know I've done to much. I used to work 60 hours a week but now I can barely do 30 and have asked to work less.
I have an almost 2 year old son so when I'm done with work I come home and also try to be the best mom I can be but some days it's hard. I feel like a constant failure.
My husband does his best but this is all new to him as well and he's still trying to understand the disease too.
It's all so overwhelming. I'm very overwhelmed. I don't know what to do and I feel that way a lot.
Any suggestions on coping with this new diagnosis? I start rinvoq soon I'm praying it will help.
Any suggestions on knowing your physical limitations?
Also suggestions on how to get your partner to understand the extent of the pain and how much it is affecting you?
I appreciate your time and appreciate that there is this group out here it feels good to just type out how I feel as none of my family and friends really understand what I'm going through.
Do you notice worsening flares in colder weather?