Xrays for AS Diagnosis ?
I hope everyone is doing well and having a peaceful weekend.
I have some more specific question outside of what I’ve read online. At what point did your Rheumatologist order X-rays after AS diagnosis? We’re you already taking the recommended medication for the disease?
It’s my understanding that X-rays help to provide a baseline and progression of the disease.
I have a lot of questions about my care thus far. My dermatologist (1 of 2 docs that diagnosed me with PsA and AS) has been a great advocate for me but I’m not seeing that same level of care from my Rheumatologist. So I asked my Derm if she knew a great Rheumatologist and she did. The new doctor is much closer to me too. So I’m considering switching gracefully. My Rheumatologist is my pain doctor’s wife. I’ve been with him for 13 yrs and he’s never referred me to her. I decided to make the appt with her when I saw my disease progressing. Anyhow it’s a delicate triangle.
Also always open to to specific practices that you do daily that help living with AS. My pain is severe and the diseases has been progressing over the past year. Finally a diagnosis 13 yrs later 🎉
Thank you for taking time to read and respond 🤗
Hopefully it can be easily removed and help your pain level’s tremendously! Keep us posted 🙏🏾
My rheumatologist alerted me to having AS after I had gone to my DR. for sever back pain months ago and i wanted back exrays. My Doc recommended to see a rheumatologist to rule out AS. Itvtook six months to get in to see him and be diagnosed. I dont have the gene marker though. He then requested an MRI of my hips and lower back. Results back this weekend said no inflammation but is some osteoarthritis and a small mass along my left iliac wing and that i need to be recommended to a different specialist and to see my general doctor for a referral. Not sure what to make of it
Not really no yet. The gut is an issue really. I'm trying eating lots of sauerkraut and pickled food and i take probiotics Kyodophilus daily
Your post is very helpful! Not too long for me since this disease required a lot of description.
It’s great that you have access to a water source and swimming. Im currently increasing my stretches. I love to do yoga again but I’m unable to “sit center” any longer due to my SI Joint and hips. Thank you for tip on imaging for the SI Joint, that’s my next ask to my doc 👍🏽
We are out of town and have access to a pool 🙌🏾. I’m able to hang with a noodle in the deep end and let my spine stretch naturally with gravity. I walk in the pool and stretch as well. I really can’t do much out of the water. I have a ways to go before I could swim laps again. I’m starting aquatic therapy again to keep moving.
I didn’t realize there were holistic options for AS. I’m always interested in the natural options first. However I’ve been on Gabapentin and pain medicine for 13 yrs. It’s definitely improved my quality of life and keeps me out of the bed as often. Not everyone with chronic pain abuses their medication. It’s become a real stigma which includes people who have an improved quality life and take theirs meds as prescribed. Sorry it’s just been really disappointing particularly in the medical industry 🤯
I’ve been diary and egg free for 5 yrs now. It definitely helps my psoriasis. I do need to focus more on my gut. I didn’t realize until this year that my stomach/digestion issues were related to AS. I just ordered pre/probiotics 🙌🏾.
Any tips you have on the gut or simple liver detox, please do share 🤗
Thank you for reading this long post and chiming in 🎉
