Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions 0 reactions Comments7 repliesFriends & FamilyTips & AdviceMisunderstood
FeaturedHave you taken up any new hobbies or activities since being diagnosed with AxSpa?Being diagnosed with AxSpa can bring some major lifestyle changes. Many have to give up hobbies and activities important to them as they can no longer participate due to pain...Reactions 0 reactions Comments40 repliesTips & AdviceCommunity SupportCoping
Active todayAnyone else have Passive Suicidal Ideations?I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately...Reactions 0 reactions Comments2 repliesMental HealthAnkylosing Spondylitis
FeaturedActive todayAre you HLA-B27 positive or negative?I think its important to highlight that not everyone with AS is HLA-B27 positive. Let me know if you are positive or negative!...Reactions 0 reactions Comments369 replies
Active todayChilling Effects: AS/AxSpa and Cold Weather DiscussionsAs the weather turns colder, many people living with AS/AxSpa experience unique challenges and considerations. Cold weather can have a significant impact on our daily lives and overall well-being. How...Reactions 0 reactions Comments11 repliesCommunity SupportSymptomsTips & Advice
Active todayNavigating Life with AS and AxSpa: Coping Strategies and ExperiencesLiving with a chronic condition like ankylosing spondylitis can present numerous challenges, both physically and emotionally. From managing pain and stiffness to adapting to changes in daily routines, individuals with...Reactions 0 reactions Comments23 repliesCopingTips & AdviceAxial Spondyloarthritis
Active todayLiving With AxSpa and Peripheral Spondyloarthritis When symptoms occur mostly in places other than the spine, the condition is called peripheral spondyloarthritis. There are several types of pSpA, including: -Psoriatic arthritis (PsA) -Reactive arthritis -Arthritis with...Reactions 0 reactions Comments7 repliesCopingPeripheral SpondyloarthritisTips & Advice
Active 3 days agoDo you experience gut issues with your AS or AxSpa? People with axSpA are more likely to get inflammatory bowel disease (IBD) than those without it. IBD includes ulcerative colitis and Crohn's disease. These conditions can cause digestive tract damage...Reactions 0 reactions Comments92 repliesSide EffectsSymptomsComorbidities
Active 4 days agoWhen it’s cold? I try my hardest to keep warm. I have good days and bad days. Sometimes I don’t know what to do to keep warm. I hate to disturb my partner...Reactions 0 reactions Comments3 repliesCommunity SupportSymptoms
Active 5 days agoAdvice on taking biological therapy and having chest infections and viral infections.Hi everyone,I have just seen the nurse and I have another infection, I am struggling with everything. In less than a month I have another infection, 5 infections and third...Reactions 0 reactions Comments21 repliesSide EffectsComplimentary TreatmentAnkylosing Spondylitis
Active 7 days agoWhat biologics have you tried and how have they helped? Please remember that everyone is different, and what works for some may not work for others. Please respect everyone's experience and their decisions to try or not try certain medications....Reactions 0 reactions Comments66 repliesTreatmentCommunity SupportFlare Management
Active 7 days agoWhat's something you wish you were told when you were diagnosed? We learn a lot from our diagnosis through experience, trial and error, and sharing information. What's one thing you wish you would have been told when you were first diagnosed?...Reactions 0 reactions Comments17 repliesCopingDiagnosisTips & Advice
