FeaturedActive 6 days agoIf you could send a message to your younger self, what would it say?Imagine if you could turn back the clock and offer guidance to your younger self, the person who first embarked on this journey with AxSpa. We invite you to share...Reactions0reactionsComments14 repliesTips & AdviceNewly DiagnosedCommunity Support
Featured How do you respond when someone unfamiliar with AxSpa questions your change of plans?Sometimes we might respond calmly; other times may be more defensive. Do you have a go-to response? Do you use it as a time to educate? Let's vent!...Reactions0reactionsComments10 repliesFriends & FamilyMisunderstood Tips & Advice
Active todayStomach twitching and pain early morning Hi everyone. Had AS for 10 years with several flare ups a year in the hips, lower back and lower ribs. Have managed flare ups with anti inflammatory breathing exercises...Reactions0reactionsComments6 repliesSymptoms
Active yesterdayAre you diagnosed with AS or AxSpa? There are 2 types of axSpA: radiographic and non-radiographic. Radiographic axSpA (r-axSpA or AS) In radiographic axSpA, inflammation, and bone damage are visible on X-rays. This is most commonly called...Reactions0reactionsComments43 repliesAnkylosing SpondylitisAxial Spondyloarthritis Diagnosis
Active yesterdayDo different seasons bring on different symptoms?For me, winter causes more lumbar, SI joints, and peripheral joint pain, whereas summer causes more fatigue, brain fog, and muscle pain. I also have fibromyalgia and feel like that...Reactions0reactionsComments32 repliesSymptomsWeather
Active yesterdayAS/AxSpa Treatment ExperiencesWe invite you to discuss and share your personal journey with Ankylosing Spondylitis (AS) or Axial Spondyloarthritis (AxSpa) treatments. Whether you've tried medications, physical therapy, lifestyle changes, or other therapies...Reactions0reactionsComments10 repliesTreatmentAwarenessCommunity Support
Active yesterdayFamily history Hi everyone I know we all have our different views on biology medicine and would never tell anyone or expect anyone to tell me what to do. I live in...Reactions0reactionsComments112 repliesAxial Spondyloarthritis
Active 3 days agoBurning sensation Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does anyone else experience this?...Reactions0reactionsComments0 repliesAxial Spondyloarthritis
Active 7 days agoDoes anyone also suffer with Osteitis Pubis?Hello, I am hoping for a referral to a Rheumatologist for more investigations (I am not diagnosed with AS) but my MRI scan has showed inflammation in my lumbar spine...Reactions0reactionsComments4 repliesDiagnosis
Active 7 days agoHow do you describe your pain (or: is this level of pain possible?) 😭Hi, folks! I'm new to this community, and I searched for an discussion like this one and I didn't find it, so I'm trying to start one 😊 First of...Reactions0reactionsComments21 repliesFlares CopingSymptoms
Active 7 days agoBalancing rest and activity during a flareHi all, I have nr-axspa and am currently in the throes of a 12 day and counting flare up. It’s been so tough, as I know everyone in this community...Reactions0reactionsComments5 repliesAxial Spondyloarthritis
