Did My Covid Vaccine Put Me Into A Flare?If you read my article How I Felt After My First Covid Vaccine, you'll know that I was very sick afterwards. I was sick for about 5 days. This is ok... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments9 comments
6 Things That Make Fatigue The WorstIn my opinion, fatigue is the worst symptom of spondyloarthritis. Don’t get me wrong, the others deserve respect fitting the ruthless wrecking balls that they are. Pain excels at agony... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like axial spondyloarthritis can... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are Biosimilars?Biosimilars are highly similar to an already-approved biologic medication. Biologic medications (including biosimilars) are typically made from living organisms. Biologic medications may be generated from various sources, including human, animal... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
"Trapped" – A Poem by Sarah LeeOur advocate Sarah Lee lives with ankylosing spondylitis and used her experience with a chronic invisible illness as inspiration for her poem, "Trapped." Listen to her spoken word performance in... By Sarah Lee1 min readBookmark for laterReactions 0 reactions Comments1 comments
An Open Letter to My BodyI don’t think either of us remembers what it’s like not to be in pain. The days of waking up feeling rested, refreshed, full of energy, with infinite possibilities in... By Diana Castaldini3 min readBookmark for laterReactions 0 reactions Comments3 comments
How To Manage The "Fat" TalkIf your BMI is 25+ you know all about The "Fat" Talk. Obesity heroes and villains morph over time, but the sentiment is relatively consistent. People gain weight by indulging... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Traveling Survival Guide: What I'm Packing and WhyThis month, I will be going on my first long-distance road trip since I was diagnosed with AS. While I am completely overjoyed at the prospect of getting a much-needed... By Katie Saville2 min readBookmark for laterReactions 0 reactions Comments1 comments
Don't Compare Your Disease Experience to Celebs'When a celebrity is diagnosed with a chronic illness, there are usually articles splashed across every magazine and tabloid. Often, their diagnosis is used as clickbait, a cheap and careless... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments2 comments
Effects of Heteronormativity in Healthcare on LGBTQ+ PatientsFrom the start, I want to be clear that I do not intend to paint with a broad brush here. There are many wonderful, empathetic practitioners out there in the... By Jessica Gama4 min readBookmark for laterReactions 0 reactions Comments1 comments
Driving Difficulties With Ankylosing SpondylitisEver since I was a teenager, I had one goal, which was to learn how to drive and get my license as soon as possible. I’m sure you can relate... By Ali Long3 min readBookmark for laterReactions 0 reactions Comments6 comments
Grief, Ankylosing Spondylitis, and a Tragedy in IndianapolisEditor's note: this article has a mention of gun violence. As I write this, in Indianapolis, about 15 miles south of me, a mass shooting has occurred at a FedEx... By Lawrence Rick Phillips3 min readBookmark for laterReactions 0 reactions Comments2 comments
A Letter to My Past SelfDear past Ali, You will never believe how much you have grown. You are so strong. You’ve been through a lot. This past year has been a tough one for you. You were bed... By Ali Long2 min readBookmark for laterReactions 0 reactions Comments1 comments
To Biologic or Not to Biologic?"I'd recommend starting a biologic," Keegan's rheumatologist suggested at our first appointment. Keegan, my husband, and I were still wrapping our heads around the diagnosis he received only 6 months... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments3 comments
My Mobility AidsDuring my thirty years so far of living with ankylosing spondylitis I had to make use of multiple aids. Glad that I could make use of them, though at the... By Rene Agterhof2 min readBookmark for laterReactions 0 reactions Comments6 comments
Coming Out of Remission After 8 YearsIt wasn’t very often, if I even did at all, that I thought about what it would be like if I came out of remission. Transitioning into this new way... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments1 comments
Build Your Own Flare ToolkitThere's no other way to say it: axial spondyloarthritis flare-ups are the worst. You might be having a good few days, and then seemingly out of nowhere, your muscles and... By Bridget Gawinowicz2 min readBookmark for laterReactions 0 reactions Comments3 comments
Reflecting on my University Experience with Chronic PainMany hours in the library later, the day is finally here — I have completed my undergraduate degree, a Bachelor of Arts, Honours Specialization in Psychology. If there is any... By Cassia Pelton2 min readBookmark for laterReactions 0 reactions Comments2 comments
Hacking Arthritis Self-CareHave you noticed how much content is devoted to what seems like normal things people should already know how to do? I'm not talking about the trumped up lists with... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments1 comments
I’m Tired of Being Judged for my COVID ViewsI’m sure many of us in the chronic illness community can relate to what I’m about to say. It’s gotten to a point in the pandemic where everything is divided... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments0 comments