No, Ankylosing Spondylitis Is Not Rheumatoid Arthritis"I have ankylosing spondylitis or AS," I tell the busy-body woman who I know through friends and family. She's asking me how I'm doing — "and what is it you... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments0 comments
Chronic Illness: What Have You Done for Yourself?I am tired frequently, meandering through the days, dragging my impaired body from room to room, the fatigue so overwhelming. Forget exercise and nutrition to any meaningful capacity. The pain... By Rebecca C6 min readBookmark for laterReactions 0 reactions Comments0 comments
How We Talk to Our Young Kids About AxSpaBecoming a parent brings so many unanticipated joys and challenges, but one my husband and I never thought about before was how we would talk to the kids about AxSpa... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments1 comments
The Lone WolfWe are wolves. Wolves are powerful, smart, loyal, and travel in packs. In a perfect world, humans should be the same. We have our families and friends we sick by... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments1 comments
6 Steps For Self-Care SuccessAuthentic self-care is grounded in the actions required to align our needs, desires, and commitments with our actions. It’s a deep process, especially when we aren’t used to spending so... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments1 comments
Signs Throughout My Life That It Was More Than Just TirednessGrowing up, I went through stages of depression, anxiety, and always not feeling well for long periods of time. I thought it was maybe just my body going through another... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments0 comments
Researching Axial Spondyloarthritis For MyselfOne of the most critical issues I think we've all been facing in the past few years is the regularity of disinformation. We have seen it during political elections and... By Lisa Marie Basile3 min readBookmark for laterReactions 0 reactions Comments2 comments
Another Winter With AxSpaHere in Australia we’re leaving the cold weather behind and enjoying the spring. At this time I’m once again conscious of all my friends in the northern hemisphere living through... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments1 comments
Being Kind to Others When I'm Having a Bad DayI used to remind myself that I'm not the only one going through things in life. Sometimes my expectations of others wasn't fair. I expected everyone to check on me... By Nadine Cruz2 min readBookmark for laterReactions 0 reactions Comments1 comments
Right Now, I Need to Put Me FirstI know today you are having a hard time. Last night, you went to bed thinking tomorrow would be a better day. You went to bed thinking tomorrow would be... By Nicky Flikas3 min readBookmark for laterReactions 0 reactions Comments1 comments
3 Tips for Accessing AccommodationsNot long after I was diagnosed with axial spondyloarthritis, I spoke to my doctor about accommodations at college. My pain and brain fog add a difficult layer to learning, and... By Jill King3 min readBookmark for laterReactions 0 reactions Comments3 comments
Not Just Coping But Living With a Chronic IllnessOne of the things that I hear from others who are living with chronic illnesses like ankylosing spondylitis is that they are just trying to cope with daily life with... By Ashley Nemeth2 min readBookmark for laterReactions 0 reactions Comments1 comments
Adapting to Life with Ankylosing Spondylitis and FibromyalgiaLiving with ankylosing spondylitis and fibromyalgia is hard. It means being in pain and tired constantly. The never ending pain and fatigue became my new norm. So, I had to... By Anna Samson3 min readBookmark for laterReactions 0 reactions Comments2 comments
Tips for Going to Live Music With a Chronic IllnessLast week was my first time since becoming this ill that I had gone back to my happy place: live music. When I was in remission concerts used to be... By Sarah Lee3 min readBookmark for laterReactions 0 reactions Comments2 comments
Living With AxSpa Has Helped Me Build Resilience Facing IllnessI have lived with AxSpa for many years; along the way I got diagnosed with fibromyalgia as well. I came to a realization last year that living with chronic conditions... By Julie Vallortigara3 min readBookmark for laterReactions 0 reactions Comments6 comments
My Lowest Point With AxSpa Was a GiftShortly after diagnosis when I was about 18, I remember going to the theater where my sister was working at the time. Me, my mum, and sister saw a show... By Jamie Boder2 min readBookmark for laterReactions 0 reactions Comments1 comments
Developing A Movement RoutineI've always been one of the "move it or lose it" types. Why? Because it's served me, and because movement is one of the main therapies experts recommend for this... By Lisa Marie Basile2 min readBookmark for laterReactions 0 reactions Comments2 comments
Finding Balance in Managing My ASWhen it comes to life lessons, it would seem I prefer to learn them the hard way! This was certainly the case when I decided to try lifestyle strategies to... By Anne-Marie Raymond3 min readBookmark for laterReactions 0 reactions Comments3 comments
Making Online Friends Changed My LifeAfter becoming incredibly ill and home bound, I not only lost my social life but also some friends along the way. This was devastating and heartbreaking because these were the... By Sarah Lee2 min readBookmark for laterReactions 0 reactions Comments2 comments
Women With Non-Radiographic Axial SpondyloarthritisAnkylosing spondylitis and non-radiographic axial spondyloarthritis are two types of the same disease. Diagnosis with one or the other depends on a person's symptoms. It also depends on how much... By Dr. Donica Baker3 min readBookmark for laterReactions 0 reactions Comments4 comments