Living the Worst Dream Ever

By Neelgala03

1 min read

I am Neel from Mumbai, India. I don't know from when I am sleeping but I know this is the worst dream in which an unknown disease called ankylosing spondylitis has been diagnosed.

It was 22nd October 2021, my both legs got swollen! I got worried what's happening. I went to an orthopedic surgeon and asked to heal those hurting heels.

Alas we did xrays and a sonography alas everything was clear. It was increasing day by day. And I wasn't aware about this thing.

Later on, the doc said to do a blood test of HLA b27, and it came positive. And then I knew it's Ax SpA.

Fighting every second every moment. This disease spoiled my marriage function, my new year and my life.

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Neelgala03 Member
Sorry i didn't replied. But now I'm completely cured. You can revert for treatment procedures or any help
1. anthony.carrone Community Admin
 <inline-mention username="Neelgala03" user-id="4524504"/> - This is so awesome to hear that you feel so much better! Every person is different and what works for one person may not work for another, but we're so thrilled you found what works best for you! Sending positive vibes your way, Anthony (Team Member) 
2. Neelgala03 Member
 <inline-mention username="Anthony Carrone" user-id="2379265"/> i just hope there is nothing as AS in this world and no one suffers what we have suffered.
Julie Vallortigara Moderator & Contributor
<inline-mention username="Neelgala03" user-id="4524504"/> Hello, How are you coping? It can take some time to process a diagnosis, it certainly did for me. Yes AS does change our life significantly, but it's not all negative. In fact, we can learn to live with it and there are ways to alleviate symptoms and adapt to a new life. You are not alone in this, we are here in you need support. And there is a lot of useful information on this site to help you manage your condition. Have you discussed treatment with your doctor? Take care, Julie.
James Hollens Moderator & Contributor
Hi <inline-mention username="Neelgala03" user-id="4524504"/> , I can definitely relate to this feeling of being stuck in a nightmare after being diagnosed. It was a scary and confusing time for me as well and I am ever so sorry that you are going through this now. But I can tell you that these feelings won't last forever. The further down this journey with AS you go the more you will get used to things and start understanding your body more. Better days are coming just keep your head up and like your photo says - stay positive! I also saw that you mentioned that your legs are swollen and in pain. I had the same problem when I was first diagnosed and found that some diet changes helped me a lot. I actually wrote an article about it that you can find here https://ankylosingspondylitis.net/living/diet-changes-help Have you started any treatment for your condition yet? Wishing you well, James (Community Member)
1. Neelgala03 Member
 <inline-mention username="James Hollens" user-id="2386640"/> Sorry i didn't replied. But now I'm completely cured. You can revert for treatment procedures or any help