HLA-B27 Positive, But My Doc Is Still Unsure?
Need some advice...
For a long time now, I have had all the symptoms of AS. When I asked my dr to test me for hla-b27, she said I already tested positive, but they dont think I have it .
So what do I do now ? Sometimes just makes me want to cry im in so much pain.
I have also had quadrouple bypass, I have a partial slipped disc, two collapsed virtibra, 8/9 I believe , arthritis, prosthesis eye, short sighted floaters, and mgus.
Please asked to to refer you to a rheumatologist.
Hi there! Thanks for reaching out.
I'm sorry you're in so much pain. We're here to support you.
Is there any way you can see a different doctor? If this doctor is not a rheumatologist, can you ask them to refer you to one? Sometimes we really have to push for this diagnosis. A rheumatologist would be most knowledgeable on AS. And sometimes, we even have to see more than one rheumatologist to get the right answer.
I'm wishing you the best of luck!
I am so sorry you must endure this. I know many in our community can understand because of the length of time it often takes for many with AS to be diagnosed.
Several factors compound this. 1. A positive HLA-B27 test is not a sure sign of having AS. 2. There is no exact definition of what AS is. 3. AS is a multi-symptom disease.
I wish there were a simple thing to say or suggest that you do. I know each of us must find our path to diagnosis or not. I hope that you find your way through. I also have to say that most of us who have traveled this same road know that we have to follow the advice of medical professionals. I know most of us will say keep advocating for yourself, because in the end if it is AS, that diagnosis will be made.
