Winding Journey

I was one of the lucky ones and I know that!

I was diagnosed incredibly early with AS. I had a terrible case of iritis, which was caused, I believe, by incredible life stress at the time. As I was fumbling through a painful week to get the diagnosis, I was in-contact with my cousin who I knew had eye and back problems in the past. He suggested I get tested for HLA-B27.

I thought it was stress

I did not go to the doctor for low back pain. I had low back pain, and it was worse in the morning, but it always got better throughout the day. I was recently married and there was a lot of change and stress with my new life - which included a new mattress, which I attributed the back pain to.

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When the HLA-B27 came back positive, I was in to see a rheumatologist who confirmed that with physical signs, lab tests, and family history, I have AS, despite very minimal symptoms. I was prescribed anti-inflammatories and sent on my way.

I had a huge flare

After about 1.5 years, my marriage ended and the stress in my life increased exponentially. I had a huge flare-up of SI Joint pain, plus my right wrist and left ankle flared, were swollen, and incredibly painful. Thus began the medication dance. After a trial of multiple medications, we finally landed on biologics, and I have been stable for nearly 7 years.

Since starting biologics, I have been able to backpack in Costa Rica, travel to Europe, complete my master's degree, travel across Canada for school/work... twice, start my career, and get remarried. This has also pushed me towards my newest life focus: I am an occupational therapist and use qigong to manage stress and keep my body limber. I have recently enrolled in a qigong instructor program and will be running education on pain combined with qigong practice.

This pushed me

Although I have AS, I know I am lucky. This has pushed me to be closer to my wife and introduced me to lifestyle and stress management, which has helped my overall health and well-being. In addition, it has projected me towards a balanced career path that I feel aligns with my personality, beliefs, and interests. I am grateful every day for the life I have, and that my body allows me to do the things that I want and need to do!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The AxialSpondyloarthritis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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