All I Want from Santa....(And Doctors)I loved my friends, I loved my job, I loved life. I worked for our state, Alaska, for almost 17 years. I found my husband at this job, and also...reactions1comment
This Pain SucksMy pain started when I hurt my back working at a nursing home. The doctors told me that I have had it for a while. My back would get sore...reactions1comment
My Journey and How I've Managed to CopeThe day after Superstorm Sandy, I twisted my knee. A few days later it had gotten worse, so went to the doctor. Sent to a ortho, and April 19, 2013...reactions2comments
I Was A Mystery PatientI was my doctor's mystery patient for a total of seventeen months or longer. Here is my story before I got diagnosed. In April 2015, the lower right side of...reactionscomments
Diagnosed and can’t go back to doctorI have been diagnosed, but due to loss of insurance I can’t go back to the doctor, I can’t afford the meds nor can I get a prescription. I have...reactions1comment
It Explained Everything!I graduated from hygiene school in 2012, and within four years I needed bilateral carpal tunnel release surgery. I was also having back/hip/buttock pain and was waking up so stiff...reactionscomments
What Is AS Like? Well...I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred me to a rheumatologist. I went to see...reactions1comment
It’s Taking Forever To Get A Diagnosis!I’m 50 now. I’ve been having weird pains for about 26 years with random explanations from different doctors. "You’re overweight" (I was not that overweight at the time). "You need...reactionscomments
AS and Everything Else!I was diagnosed with ankylosing spondylitis in 1980. I was 18, I had excruciating low back pain to the point I could not walk sometimes. I was having trouble working...reactions1comment
Undiagnosed and pain getting worse.I have had serious back and hip pain for several years. My pain management doctor said I have arthritis. The pain is getting worse and sometimes I can hardly get...reactions1comment
2nd Generation ASI grew up with a dad who had an extreme case of AS. It was the 60’s and nobody knew what was wrong. For years he chased cures. Endured barbaric...reactionscomments
My Life Changed Seemingly OvernightI don't tell my AS story very often. It seems so long to me and I never know if anybody really wants to hear it considering there are so many...reactionscomments
Just The BeginningMy dad was struggling with pain for twenty years before he was diagnosed. Luckily, as a triathlete, he was somewhat managing his pain without ever knowing anything about the disease...reactionscomments
Finally, An Answer To My PainI've dealt with back pain all my life. Then it started spreading. A couple of years ago, I finally got a dx of AS. It is not a fun dx...reactions1comment
MisdiagnosedStarted having pain in SI joint early 30s but pain management said it was my lower lumbar even burned nerve in that area along with steroid shots that never helped?...reactionscomments
My Ankylosing Spondylitis Diagnosis After Cancer.As far back as I can remember, I’ve always had aches and pains. My aches, pains, and cries didn’t make my parents investigate further as they just dismissed it as...reactions2comments
Trying Different Treatments for Ankylosing SpondylitisAt age 50, I had hand pain, back pain, and swelling and was told I had rheumatoid arthritis, w/o testing. Methotrexate was a drug that Dr. prescribed. After a year...reactions2comments
From Super Mom to AS WarriorIt's bad enough that I have fibromyalgia, Lupus and Hashimoto's disease. Then after tons of Xrays and MRIs, I'm told I have Ankylosing Spondylitis. Fusings is what is causing most...reactions3comments
Shelli's StoryI'm 48 years old and in the past worked my life as a surgical technician and sterile processing technician. I started having pain, usual pain after a day's work. More...reactions2comments
My 15 Year Journey To Diagnosis In NYCAt the age of 15, not only did I develop asthma, but also started getting what I called "chronic back pain" for the next 15 years. This pain remained treated...reactions2comments