10 Things You Shouldn’t Say to Someone With a Chronic IllnessI am sure that you, as someone suffering from one (or more) of the above, have encountered people who just don’t get...reactions6comments
Remission? Wow. Remission!Honestly, I feel great. I don’t (nor does any doctor I’ve met) know why or what to credit; that’s why I’m detailing...reactions9comments
Finally a DiagnosisI have suffered with back pain for 25 years, with multiple visits to doctors, to only be told endless times that there...reactions6comments
How to Explain to Friends and FamilyI’m sure I’m not alone in this but when I was diagnosed with AS I had no clue what it was or...reactions5comments
New to ASDiagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for...reactions3comments
The Problem Is Not In My HeadHi there, fellow AxSpa warriors! My name is Lenka, I’m 29 and I’m a girl from Slovakia. I have a story to...reactions11comments
A Man is Pain and His MusicHi, as a boy I used to carry coal as we owned the local coal business. I was into my sports rugby...reactions6comments
Just another bad dayFriday morning, 6 am, the voice of my husband trying to wake up the kids for school. I tried to open my...reactions5comments
Where to Go?I have been diagnosed with Ehlers Danlos syndrome, since my Sister died in 1996, and with it ankylosing spondylitis, among many, many...reactions2comments
Young and DisabledI first began showing symptoms of Ankylosing Spondylitis when I was 16 years old. I was officially diagnosed with AS three years...reactions2comments
My StoryI started with hives 2 months after I graduated college. I was on many different meds for them but nothing help. I...reactions2comments
You are just a monster ... I am not scared!On the good days (still in pain but manageable), I feel like I am on top of the world. I am so...reactions5comments
My Journey with Ankylosing SpondylitisMy Name is Gillian and I live in Bromley Kent. l have two sons Mark and Lee l started to get pain...reactions6comments
My Son, the ZebraWhat’s wrong with my son? I asked doctor number one. He’s perfectly fine. He should go out and just have fun. But...reactions6comments
The struggles having a chronic illnessHello my name is Nicky. I am 33 years old. I am a mommy to 3 kiddos that are my world and...reactions2comments
Looking for new cureI have had AxSpA for about 24 years. I am 73 and yes I have tried everything from stem cell therapy, opioids...reactions4comments
Trying to Find Answers After Being Told Different ThingsI was diagnosed with rheumatoid arthritis in 2017. I've tried about 8 medications. I am now on Simponi Aria infusions. I started...reactions2comments
Living at Age 67 with ASI was diagnosed in 1978. I have had 2 hip replacements and surgery on both hands. I use a hot tub daily...reactions13comments
5AM: A Poem About Ankylosing Spondylitis5AM She rolled over Wrapped in her skeleton Devoured by it’s pain No No No Don’t roll again Ashamed, a shame, a...reactions5comments
Dwayne's Disability SubjectI was medically terminated from my job at Oracle, last year in the month of July 18, 2019. I immediately applied for...reactions13comments
