ankylosing spondylitis
Hi how are you? i was diagnosed almost 2 years ago after suffering for years... i was put on hulio 40mg weekly for 6 months worked like a dream, until symptoms came back got switched to cosentyx weekly , no effect then amgevita weekly no effect again. i am in constant agony, steroids difene injectons oxynorm solpadol arcoxia vallium the list is endless, any body have any injection that suited them or any advice as talking to people that dont have this disease dont understand the daily struggle ???
Hey
,
I'm sorry to hear that your medication stopped working for you and the next couple did not give you the relief that you had hoped for.
It seems to be pretty common for some medications to have different effects on different people. All of our bodies react to these treatments differently so sometimes it takes a little bit of trial and error to find the medication that works best for us. I hope that you are able to find your perfect match soon! Are you planning on trying a new treatment?
As for tips on talking to people that don't understand our struggles - that is a little hard! I think it depends who the person is and what the topic / situation they aren't getting is. The ways I have dealt with these things have varied from having open and deeply honest conversations with people, sending them links to articles and even cutting people off who's lack of understanding is causing me added suffering that I don't need!
I hope that you are able to find some relief from your symptoms and from these people that don't understand soon!
Wishing you all the best,
James (Community Member)
