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Anyone else have Passive Suicidal Ideations?

I have noticed more PSI as my disease progresses. I already have Anhedonia, but the thought of just dying by some means other than my own doing sounds better lately.

Anyone else?


  1. - I wanted to check in and see how you've been doing since we last talked a few months ago. How did you handle the holidays? I'm really sorry to hear that you've been feeling so down because of the challenging symptoms of AS. Please keep in touch – we'd love to hear from you and get an update on how you're doing. Thoughtfully, Rebecca (community moderator)

    1. Hi I’m truly sorry to hear that you’re going through such a challenging time. Living with axspa can undoubtedly take a toll on mental well-being. I want you to know that you’re not alone in feeling this way. Your openness in sharing your feelings here is a brave step, and it’s essential to reach out for support. We’re not professional counselors, but I’m happy to send you some resources/information if you like? If you ever need someone to talk to, please don’t hesitate to reach out. We’re always here for support.

      1. Hey there - Wanted to hop on to your question possibly to help others understand your inquiry. Though a difficult topic, it should be addressed. I am glad you are reaching out to see if this happens to others in our community. PSI (passive suicidal idea) is defined as contemplating dying or harboring a wish to die, without actively working toward that outcome. It’s different from being suicidal but if left unchecked could lead to a loss of life. https://www.psycom.net/depression/passive-suicidal-ideation Having a chronic illness(es) definitely makes those affected to be quite vulnerable to depression and mental health disorders. Feeling this way has definitely crossed my mind over the years. And, I have connected with someone (psych) who could help me figure these emotions and feelings out as I go about treating my comorbid health conditions. It is a complicated and multidimensional subject and should be treated by a professional. It is really a hard topic to discuss and people may find it difficult to put it down in words that there are indeed feelings of PSI and/or anhedonia. I went through a very difficult time when I had a 2-year long flare that just would not seem to end. I was exhausted and had no energy and no interest in doing anything - and thought those in my family would feel it best I no longer existed. But contrary to my belief, in reality, my family would be devastated. It's really difficult to come out of this line of reasoning once affected, especially if your disease is progressing and symptoms change/increase. Have you discussed this with a professional who can help you understand and ease these feelings? I know you are interested in experiences, and I hope the community steps up to help you out. Just know we are here to listen and we hear you. Please continue to post. We value your thoughts. Rebecca (community moderator)

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