Has anyone else experienced dizziness like when sitting still it feels like you’re spinning or bending/turning you go dizzy or lose balance please ? Alongside ears sounding like crickets in the field and upper spine pain?
Could this just be part of a flare ? I’ve never had this before, my TNF has fully stopped working now and I am in agony everywhere but for three weeks straight I’ve been getting severe head pain, nausea feeling like I’ll vomit and my head spins, it’s not tension headache or migraine just feels utterly awful.
I went to a walk in to see a doctor as my gp surgery no appointments for weeks bloods not showing a infection and nothing obvious.
Discs in my neck and upper spine between shoulder blades feel like they’re being crushed as do my hands so it’s hard to even type.
I was hoping it’d be a ear infection or something that could be treated but nearing four weeks, I’m also really weak hot and cold sweats piling on layers then having to strip everything off over and over but no temperature and breaking into a sweat literally like soaked in sweat with even simplest tasks or walks and I’m someone that never sweats really not even during activity unless it’s super hot out.
I don’t get to see anyone or call anyone for advice elsewhere or be seen to change my TNF sooner due to all the crap that happened with rheumatologists and we’re trying to switch back to my old one so basically no knowing how long before an appointment comes and he doesn’t ever answer any questions.
on,y reason for switching back is the lady we tried to switch to was awful, tried to suggest diagnosis wrong without asking me anything or any solid proof and to basically take away all meds from me instead of offering a different TNF and THEN when I was in tears because I’d literally kept going for this appointment to be shit all over further by her, embarrassed already to be crying in front of her she then contacts social services opening a case against me insisting that I’m a risk, trying to blame all my pain on me being mentally ill and depressed (I’m autistic, I experience emotions intensely and hospitals overload me, I was distressed for valid reason and I get depressed during flares but I’m not unstable or needing that)
I have a few m weeks left of my current TNF, not sure if should take what’s left even given it’s been a year and now seems it’s finally fully not working or just leave them but now I’m dealing with these new symptoms right before first colonoscopy coming up I’m just feeling very overwhelmed and hard to stay positive about things again a little if I’m honest.