Has Anyone That has AS , Arthritis, Neuropathy ever had a EMG Upperextremities
I went to a Neurologist on Thursday 10/14/2023 to have the EMG Test .It’s the painful Electricity’s Test to find what nerves are damaged. At the end he came back in and told him my wrist hurts badly. “ I didn’t shock your wrist” .well you did my thumbs and area between thumb and index finger.” He quickly got off topic and told me I had pinched nerves in both elbows and have Carpal Tunnel in both arms. “ I can do the surgery as an outpatient in 30 minutes.”
I’m 75 years old and not having any Surgery so mark me off your card!
I’m guessing that you didn’t know I have AS, NEUROPATHY, CHRONIC PAIN,30 YR LOWER BACK PAIN,OSTEOARTHRITIS . He didn’t say anything and left. I took the time to fill out my medical history and he never read it !, I left called UBER because I couldn’t drive and scared I would hit something . Now within 2 hours I had the most Severe pain that I’ve ever had, every joint in my body was inflamed , my hips are really inflamed and lower backand pain pill won’t stop it .The bottom of my toes and fingers tips are burning from all the electricity shooting out my toes and fingers, my ankles and feet hurt so bad can’t walk very far . I see why you give the lower EMG Test first because if you did this painful test First I would never show up again and I’m certain that I’m right.
An email was sent to Dr. and of course he didn’t reply on Thursday or Friday. On Friday at 11:30 I placed a call to his office and said wanted to speak with him. “He’s with a patient then leaving for weekend”. You better tell him that he really hurt me so I have to speak with him. Apparently she realized I was angry and in 15 min his answering service calls me then puts him on the phone. He asked what’s wrong and told him I’ve never hurt this bad and that’s saying a lot. Every joint in my body is inflamed and I need some help. Why don’t you come over to my office on Monday and I will check it. Really ? I know what pain is probably only thing that might help are some Steroids. “ I’m a Neurologist and don’t write an RX for steroids, what if I did and it came back on me” really.
Then he started dancing go to the ER or Doc N Box Clinic, so I can waste $150.00 deductible so that’s not an option after giving you $336.00 dollars. “You need to call your pain management Doctor and have him write you an RX “- I told him that my pain pill won’t touch this pain. Why would I want to call him make an appointment and pay another deductible fee and you are the one that shocked the living daylights out of me NOT my Pain Management Dr. You just don’t get it and you are the only Doctor that I have ever seen in my 75 years on this earth that is a narcissist as you are . I see that you are more concerned about yourself than the patient. “ I’m not like that” oh yes you are !
I want to interject a thought about this phone call. “ Well what would that be ? I won’t be in your office on Monday - I could tell by the silence he didn’t believe me. My thought is that this conversation is over- Click. Lol felt good didn’t help pain.
I would sue him for his office charges and my deductible that they overcharged me by 10% according to my Insurance Company .You have to sign a hold harmless agreement in case he hurts or kills you.
Has anyone experienced anything close to this ? I would love to hear from you about your experiences.
Thanks! Ron
Rebecca, thank you for the response and the link. I’m feeling better it’s been in the 80’s.
Rebecca, why does all of this appear in my post ? I didn’t include any spam or outside links . how do you edit a post so I can correct spacing etc that I missed ?
I- It wasn’t that I was reluctant to leave my house. I couldn’t physically even walk with my ankles, knees and swollen feet. 
I see - Doing anything with swollen and painful hips, ankles, knees, and feet is challenging. I was indoors for around 6 months after the 5th revision of my ankle replacement. Then I had a hip replacement and was indoors for another 5 months. I've also had times when this disease has just worn me down and I couldn't attempt to leave the house. Coping with spondyloarthritis can be formidable. I had to keep reminding myself that with the right strategies and support, improving my quality of life is possible. Hoping you find the assistance to address your needs and get you up and running again. Warmly - Rebecca (community moderator)
Rebecca, actually my Dr.’s sent me 4 guys to pick from who were close. After I called here she was irritated w him & she saw him said was good. She did not have EMG Tests but quickly called in a RX for Dexmethasone Friday after I spoke to him. Today I could feel the inflammation receding but still couldn’t do very much beside not sleeping at all last night , I called my Pain Mgmt Dr whom I’ve seen for the last 12 years so they know me very well.
I have his Cell number if I reallyneed something which has happened before .He had a new Med suggested by the Walgreens Pharmacist who said that I should try whI did. Within 10-15 minutes after taking itI. It turned me into a stark raving mad lunatic, leaning against a wall with just gibberish coming out of my mouth. Luckily my Son had stopped over to visit and he made a video of me sent to Dr. It wasn’t 5 minutes until he called me apologizing about the medicine and sent an RX over to contradict the effects and it worked.
I called the Nurse this morning and She told me come in today at 2 they wanted to see how bad I was . She was shocked how badly that I was walking all bent over with my cane. She immediately took me to a room took blood pressure, called in refill then the PA came in raised the bed , undo your pants, bend over and hit me with freeze Spay then a shot in lowest back closest to tail bone on each side. It didn’t take long for my hands to start to loosen up and the Uber ride home was smooth and fast.I’ve been moving my legs all the time since getting in bed tonight , in addition to all the other problems I also have RLS= Restless Leg Syndrome . I just took that pill and hope it stops all the movement going onsince I have to sleep. It’s getting colder tonight maybe 48 degrees and I’m shivering , as you know when you get cold it starts to really hurt. Tomorrow it’s going to be 82 degrees ad Thursday back in the 90’s
I’m hoping to be able to sleep some tonight since I’m really tired , wobbly walking , lightheaded so going to try get some sleep! Usually I can sleep about 2-3 hours roll around get up, grab my blanket and move into my Leather recliner / rocker which helps changing my position after hurting in bed.
I found some Hemp Level 9 Gummy’s that have worked well in the past and they are Legal. The ones I’ve purchased have the lab report and very well known. Thank you for the Healing wish. ❤️
Ron- It's positive to hear that you sense some relief with the inflammation receding and I am really glad to see you've advocated for yourself and were able to get someone (anyone) to help you. It sounds like you had an awful time with that one medication but glad you were able to reverse the side effects quickly and effectively. How scary! I've never had a medication do that to me and am grateful. However many have given me side effects such as severe headaches, nausea and/or drowsiness. I certainly hope you do get some hours to rest up and your sleep is deep and refreshing. Chronic pain really takes a toll on the mind as much as the body. I wish you well tonight. Hoping the gummies are helping as well. Thinking of you as you manage this pain. Warmly - Rebecca (community moderator) - I have NOT been able to reverse the side effects with any medication so far. All the pain is from the Electricity Blast giving my nervous system is the worst treatment it ever had. I’m approaching my 3rd night without sleeping and it’s really taking a toll on me. I went to see my Dr,. Yesterday, gave me 2 lower back injection’s with Steroids which felt great until about 6 yesterday pm. I started kicking my feet and was asked to get out of bed so my wife could rest and go to her job next morning. I went to my recliner spending the night moaning , groaning, freezing covered w blankets all I did was kick making my hips hurt worse. Im getting ready with my blanket all ready for a long night in my recliner.
Today I called my Doctors office suggesting they find something to make my pain slow down. He found a new RX but Ins Company said no to paying their part in a $4,936.59 cost, then they sent in a newer one that was $1,500 , No. My Cheap Insurance Company said give him Morphine ER which must be the cheapest meds available or they wouldn’t have suggested it. This Med has been available since 1975 so must be cheaper than dirt.I respectfully declined since last time and side effects not good plus it breaks me out. I have another story about it but will save for a day when everyone needs some Good CleanHumor.
I’m very pleased with the caring and responses that has been given me. ❤️
- what an ordeal! I'm sorry to hear this is happening. Is it possible to email or use the patient portal to ask for assistance from your pain management (to perhaps avoid the fee) or possibly your rheumy? I imagine the pain from enraging those nerves is quite high from the EMG. I hope you find a way to let them calm down and your body starts to feel better. I've had the lower EMG and it was NOT a pleasant procedure. My nerves were pretty incensed afterward. It did take some time to let them settle but eventually they did. My thoughts are with you as you go through this flare of pain. Please keep us attuned to your progress (or decline) as you manage this. I certainly hope someone can help you through this painful period. Wishing you healing. Rebecca (community moderator) - Something else started happening and it’s just as annoying as it can be. It doesn’t matter what direction that I turn my head my neck pops over and over and over. There isn’t anything that I can do to make it stop popping.
I spoke with my Rheumatologist about my neck popping and he told me there isn’t anything to do to repair it. He said Sometimes this happens to some of my patients that have AS. Oh great. It doesn’t hurt it’s just so darn annoying..- Neck popping can be very annoying. I have dealt with a "crackly" and "popping" neck for years now. And, although fused on 2 levels, it still does it. I wanted to stop by and drop a link off to you about arthritis in the neck. Hope it helps. https://creakyjoints.org/living-with-arthritis/symptoms/arthritis-in-neck/ Wishing you relief. Rebecca (community moderator)
