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What symptoms of AS do you experience?

Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).

Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.

  1. Multiple joint pain

    1. That sucks. Which joints hurt the most? How are you managing the pain? -Latoya (Team Member)

  2. Lower back pain unable to stand straight up.

    1. That's a huge pain. Have you tried any stretches to help with it? -Latoya (Team Member)

  3. Back of head down through neck, shoulders, elbows, joints in wrists and fingers. Spine, hips, knees, ankles and feet, toes. EVERYWHERE! The worst is in the spine where I also have several other problems such as severe Disc Disease.


    1. Being able to be out in the yard, shopping for my own groceries instead of depending on someone else picking out items. Also, being able to shop in store and trying on new bras and shoes! And of course getting a good nights sleep.

    2. Itโ€™s amazing to hear youโ€™re reclaiming so much independence. Being able to do the things you enjoy and sleep well again is such a huge step. May you continue to see positive growth and change in your journey! ๐Ÿ’™ -Latoya (Team Member)

  4. Heel pain, pain in the tops and sides of my feet that feel like my feet are broken when Iโ€™m walking, hand pain, shoulder pain, ribs, my entire spine, I have horrible brain fog and my brain will shut down in the middle of a conversation, GI issues, chronic fatigue

    1. Not yet. I just started Enbrel in November and Iโ€™m not sure it has kicked in fully yet. In fact, I told the pharmacist I thought I felt worse. She said to give it a full 6 months before I gave up on it. I am looking for all the information I can get on this disease. Itโ€™s very overwhelming.

    2. Overwhelming is the right word! One of our patient leaders wrote about how she rides "the wave of overwhelm." Maybe there'll be something in the article that might resonate with you. Six months seems like long time, but you've got my best wishes. Warmly, Kathy (Team member)

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