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What symptoms of AS do you experience?

Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).

Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.

  1. Bad pain around spine ribs and left side of.back. burning and then icy cold feelings caused by trapped nerves. I sometimes vomit because of shaky feelings
    Dont feel like myself .

    1. All those different symptoms is a lot to deal with! You aren't alone, though. Here are some tips from other community members that might help with the nausea and vomiting. I hope you get back to feeling like yourself soon. Warmly, Kathy (Team member)

  2. I've been bothered since grade school. First it's like I've carried heavy loads and what I thought was low back pain was actually from my SI joints. That kept getting worse until I graduated high school.
    At 69 I have a lot of muscle spasms.

    1. Having symptoms start that young and then follow you throughout life is a lot for anyone to deal with. When something starts in childhood, it can almost become your "normal" even when it really isn't. I hope you've found at least a few things over the years that have helped take the edge off those spasms when they flare up. Warmly, Latoya (Team Member)

  3. Pain all over

    1. AxSpa pain can be so relentless sometimes. When the pain is everywhere, it can make even simple things feel overwhelming. Are there certain days where the pain is more manageable, or is it pretty constant for you? -Latoya (Team Member)

  4. I have the typical issues but my biggest pain is when i have to sit on a chair or much worse a car seat. I wonder if someone else have this problem? the next thing is, i need to get up alot because of the pain but on the other hand i can't be up longer then 2 hours or sometimes 3 because then the pain get also worse. So i can't stand up a long time but i also can not sit to rest a little bit. I'm kinda homebound because of that. I never hear someone talk about this Kind of problems and i wonder if i'm mostly alone with this symptoms?
    (I'm from germany so i apologize if my english is not correct)

    1. I do not blame you at all for not wanting to take medications that make you feel mentally worse just because doctors want you to try them first. It’s hard when you feel like you have to choose between physical relief and feeling like yourself mentally. But I’m glad you’ve at least found something that helps with the spasms and inflammation a bit. -Latoya (Team Member)

    2. , I also have the problem that I can't stand or sit for long periods. My neck and back are curved forward. I can't sit in a restaurant or at my own table. I can't get an MRI or get my eyes examined, because the machines aren't designed for people with curvature of the spine. I now eat and sleep in my recliner chair.

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