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What symptoms of AS do you experience?

Chronic, long-term back pain is one of the most commonly reported health problems in the United States. Not surprisingly, back pain is also the most reported symptom by people living with axial spondyloarthritis (axSpA).

Other symptoms may also occur with axSpA, such as uveitis, fatigue, psoriasis, heel, shoulder, foot, and other joint pain.

  1. Pain all over

    1. Severe pain

      1. I am so sorry you are experiencing this! Have you found any particular way to help you manage the pain? (For many community members, pain management is a trial-and-error process) One of our health leaders wrote an article about the things she does to manage the pain. Warmly, Kathy (Team member)

    2. It still amazes me when I tell someone in the medical field that I have AS and they ask: What is that? Then trying to explain what it is and they still can’t understand. I have learned to just tell them they should look it up. So frustrating!

      1. It is maddening when you are put into that situation, isn't it? You aren't alone, unfortunately. One of our health leaders found herself in a similar spot and wrote this article with tips on the importance of advocating for herself and educating her healthcare team. I'm sorry you are in this situation, too. Warmly, Kathy (Team member)

    3. Acute lower back multiple times at night and in the morning IISG pain. Movement ( walking, stretching, yoga,...) helps with both. Pain in the whole back when the atmospheric pressure change, only hot pillow helps with this pain. Rigidity.

      1. Thank you for sharing! It sounds incredibly tough, but it’s good that movement brings you some relief. It’s a lot, but you’re doing what you can, and that's all that matters. Continue to hang in there! Kindly, Latoya (Team Member)

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