Help/ Advice

HI, I'm a 42 year old father of 4 and could really use some advice. I live in the UK and have a family history of AS. I'm HLA-B27+ and started with symptoms 10 years ago. Back then I had an mri and blood tests which showed no inflammation and some negligible mild changes to the lumber and cervical spine. In 2017 I had another mri which again showed no inflammation and some further changes in the spine, mainly osteophytes. I then developed ulcerative colitis out of nowhere. Fast forward a couple of years, mri again shows no inflammation but lumber spine has now got bilateral osteophytes abutting nerves going as low as S1 and obvious issues with disc degeneration. Cervical spine has developed mild degeneration including osteophytes and facet joint arthropathy. Fast forward again to November 2023 my latest mri, no inflammation but obvious further degeneration of lumber spine and moderate to severe multi level stenosis in my cervical spine from c3 to c7 including spinal cord moulding but no signal changes and significant nerve stenosis from c3 to c7. My rheumatology doctor discharged me due to lack of inflammation, they claim my issues are general wear and tear. I'm in my early 40's not 70's. I'm concerned that in 10 years I have gone from being in pain with minor issues to being in significant chronic pain with severe multi level issues and a family history of parents and sibling with AS and I'm going in the same direction. Surely it's not normal? I'm concerned as my father who has an entirely bamboo spine said his AS journey was similar. Why are my rheumatologist so obsessed with the lack of inflammation. I cannot take nsaids due to colitis so have only pregabalin for pain which isn't helping. I don't know where to turn to get answers. I have all the typical symptoms of AS, morning stiffness, lower back pain, sciatica, heel pain as well as the spinal changes. How can I get them to listen to me.