Many people in our community come here looking for answers. Most of us here know what that feels like.
What were some of symptoms that lead you to seek answers?
Did you experience symptoms you later found out were caused by AS?
Start or join the conversation below!
Lawrence Rick PhillipsMember
It took about 10 years and 4 surgeries before anyone believed I might have AS. I am now ten years later and my docs still roll their eyes when we talk about it. Dude, look it's been three spinal surgeries and one-foot surgery in part to correct a shortened Achilles tendon issue. Enough was enough surely,
BubbieMember
The Rheumatologist I have seen has suggested he thinks it’s AS and has drawn blood and done X-rays. So far he has seen OA at my lumbosacral joint, anemia, elevated add rate, and positive anti-ccp. The blood results were present back in August and again in January. He’s done the hlab27 test and it was negative. So I am supposed to see him again in February and I guess he will have more understanding or more test - or both then. My complaints were a broken finger joint from popping my knuckles, lots of joint issues like in my knees and hips, and upper and lower back, and neck. I’d never really heard of AS before so I have had no clue. He also suspects lupus due to my skin issues.
dricaMember
I had a debilitating lower backache that went down to my buttock and down to the legs at my early twenties. I wasn't able to walk anymore and for 25 days I battle against everyone to prove I wasn't crazy, that what I had was real and not product of my imagination or, as some doctors said, a "psychosomatic disorder". I was in a wheelchair for all those 25 days and after seeing nine different doctors I was finally diagnosed with AS!!
It was with alive that I received this diagnosis!! Until I realized that a "new life" was ahead of me and I would have to learn how to live with a debilitating condition!
Cassia PeltonMember
Hi, thank you so much for sharing! It's really frustrating that our real, debilitating illnesses can be dismissed as "psychosomatic." It sounds like you have had quite the journey to diagnosis. I'm glad that you finally have an answer and are now on the life-long journey of learning how to manage! Best of luck to you with everything.
MoonchildMember
hi. What treatment are you receiving? Are you with pain management or arthritis dr?