How do you stay comfortable when you're uncomfortable?
If you suffer from AS, then you probably know the struggle of always trying to make yourself comfortable in almost every situation. What items or methods do you use to stay comfortable on your worst days?
Showering is a challenge as explained in the article, but AS has expanded into psoriasis and psoriatic arthritis, so that when I am done showering I break out in rashes on my face that feels scalded. Showers are no longer joyful or relaxing 😒
Heating pad and ibuprofen.
I’m right there with you. I use my heating pad faithfully every night! -Latoya (Team Member)
I have a Personal Support Worker shower me, and I use a bath stool.
Having support and a stool seems really helpful. How often does your Personal Support Worker come to help you? Is it daily? -Latoya (Team Member) , it was three times a week, but I have been reassessed. I am now receiving PSW service every day, including weekends. Thank you for asking.
Because I have MS, heat is mostly my enemy - isn't that funny? However, I use all my effort to track down things that help me cool! I have found sheets that cool me immediately, so I can have them on my bed. For the first time I found a light blanket that I can use, also. It is so amazing to feel the weight from the blanket on my body! I haven't had that in years!
Also I think I will sew on weights to the sheet in summer!,
I love how you are dedicated to finding things that keep you cool.
It's great that you have found a few things that are making a difference for you.
Please continue to keep us updated.
Kindly, Doreen (Team Member)
