caret icon Back to all discussions

Medication

I am due to start Rinvoq this weekend, I have been on biologics for 12 years, but I’ve had a 2 year break and now I’m really anxious again about side effects, I read some and they are so scary, I’m not sure what to do

  1. Hi Nicky I don’t even know, I think it it starts with a Hum,I really don’t want to know. Have read all the horror stories of the side effects, I know that people young people it effects different not as bad but at my age starting a very powerful drug is terrifying.
    I spoke to the consultant eventually but she wasn’t very reassuring.
    Bless you, how do you feel?
    Yes maybe it’s the first step but my head says I don’t want to do that first step,but I know I have too.
    How long have you been on them?
    I didn’t want a steroid shot but have had three know but they have been ok no side effects, I had two last year and one in late January but it’s wearing off, they don’t like giving me those as said it’s not good for your system but this is a million times worse with two pages of horrific side effects.
    Right now I am thank you, but mentally I am not as waiting for the letter to come.

    1. Hi Jan,

      So happy you to hear from you again. I totally understand what you are feeling. You have to do what is best for you and how you feel.
      I was diagnosed in 2021. It was a struggle as any medication I was trying I was prone to getting side effects. I have been on 4 biologics up to now. Cosentyx is my fourth one and the longest one I been on. It's going now a year and 7 months. It's helped me slowly get out of bed and be able to move more.
      Hope you are having a better day today. Would love to hear how your doing?

      Nicky (Team Member)

  2. what scary side effects as I am terrified now.🙁 I am about to start biologics

    1. Hi Jan,

      What biologics are you starting off on ? Is it your first time ? I felt the same way starting on biologics. Even now I get like that every time it comes to a new medication being introduced. But once you take that first step, it start to get less and less scary. I keep reminding myself maybe trying this med will be helpful.

      Hope your doing well.

      Nicky (Team Member)

  3. Hi @Manda36

    I know how scary it can be trying a new medication. I think it's normal to feel like that as we don't know what to expect. I get the same way every time I need to try something different. But I know if I don't, I won't know if that medication might be the one that can help me find a better quality of life. I recently started on Ozempic and I was so afraid reading all the side effects. But i told myself just to start and see how it goes. I am always able to stop if I see it won't work with me and my body. One day at a time. I hope Rinvoq will go all well. Sending you positive vibes your way!!!

    Nicky (Team Member)

    1. Best of luck with starting Rinvoq! How has your first week or so gone? May I ask, how did you feel on your 2 year break from biologics? Ali (Team Member)

      Please read our rules before posting.