Pain on walking
Hi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed.
I am laid wide awake uncomfortable in bed and questioning my diagnosis already. My stiffness has become worse very quickly and driving to work or standing up for a while is very painful (I have a list as long as my arm really which could be related or unrelated). I was diagnosed based on symptoms and SIJ inflammation on MRI. All blood work normal. Awaiting MRI of neck due to reduced range of movement.
Two things which are throwing me which don't fit:
Laying on my back with my knees straight exacerbate the pain and
I get pain if I am walking slow. So much so that I have to force myself into a hunched position, which is very painful and spasm-y, then relieves pain temporarily.
Does anyone else get this pain when walking? Its usually when walking slow/dordeling with kids. Not as bad if get a proper walk going!
thanks so much for your reply. Despite feeling relieved that someone believes me (multiple times of been put on anti-depressants because must be in my head or must be because you have young kids etc), I also think I am in denial and looking for reasons why it must be incorrect. I cannot take NSAIDS because I have gastritis (endoscopy shows stomach inflammation) and I have abdo pain few times a week on a morning. Meds for acid haven't helped and now I wonder if its back pain radiating as cant find a pattern and diet good! Maybe incidental finding of gastritis. Had stool screen for IBD. This all feels so overwhelming! Hi, Lrm590 ! AS can interfere with out health in several ways: spinal, stomach problems or eyes. So your gastritris could be stomach troubles associated with the ankylosing spondylitis. Both my daughter and I have AS and stomach issues. And each of us has handled the problems a different way. Work with your doctor to see what med would be best for you, as some of them make your stomach worse. If you dont have a good rheumatologist, you could go the route of a gastric doctor, but not every stomach doctor has experience with AS.
Keep at the doctors! You are worth it!
,
Welcome, we're glad you found this community.
A new/recent diagnosis can certainly be overwhelming and chock-full of questions and concerns.
While back pain and stiffness occur in most people with axSpA, the severity of symptoms varies greatly from person to person.
Some of the most common symptoms of AxApA include: pain in the spine that gets better with activity, limited flexibility in the spine and pain in other parts of the body (such hips, heels, or shoulder).
I'm sharing this article in hopes that it may provide some helpful information:
https://axialspondyloarthritis.net/symptoms.
Please know this community understands and is here for you. Reach out anytime with questions or concerns.
My best, Doreen (Team Member)
Hi,
,
Since AS can include any part of your back, including your pelvis, saying straight on a bed could be extremely painful. It would be for me!
Also pain when walking for sure. I find that if I walk faster, I don't have as much pain. I think this is because my muscles are tighter when I walk faster. I can totally see that dawdling with kids would have you walk more slowly, and with longer and shorter steps as well as not aiming in one direction. Yep, that would be super hard. If I walk longer, I use walking sticks. But they don't help with pain and slow walking.
I hope now that you have a diagnosis, your rheumatologist will offer pain meds. As well as a med to slow down progression.
Sincerely,
LisaWY,
Thanks so much for chiming in and offering help and support.
We're grateful you are part of this community.
~Doreen (Team Member)
