Periphery flare-up stuff
Hey all. I'm back after a year-long hiatus. It's not like I didn't have flare-ups, but I have managed a lot of things fairly well and took my best year-long stab at trying to manage AxSpA without biologics. This chapter may slowly be coming to an end, though. Adding a secopnd kid into the mix and being a stay-at-home dad has proven to be exponentially more difficult than I could have ever imagined with this disease, and unfortunately, it's taking me down pretty quick 🙁
I am just wondering how you all manage with some of the other parts of flare-ups: the brain fog that's so bad you can't keep a thought or direction. The extreme fatigue and weakness that makes it impossible to play with your kids. The mental health issues: I am struggling with the occasional "break-down" when I go through flare-ups, and it's getting more and more difficult to manage.
I am seeking out a new Rheumaologist in my area: I have one lined up for June, but I am also looking for any recommendations in Washington State, southwest Idaho and northeast Oregon.
Thank you in advance for any help. I am grateful for this community.
Hello
- welcome back. It's understandable why you've had to step away, and, amazingly, you managed a year without biologics while navigating the challenges of being a stay-at-home dad, especially with a second child in the mix. Congrats! This disease is tough enough on its own, and adding parenting responsibilities just makes it even more incredibly demanding. It's important to recognize that the symptoms you are experiencing are valid and deserve attention. Brain fog, fatigue, and mental health struggles are unfortunately common with this disease. One thing I found to help was getting into a routine. It truly helps to make things less chaotic. Also, I made sure in my schedule somewhere that I was resting. I know it can be difficult to manage when caring for young children, but rest when they rest. Also, I find small bursts of exercise give me energy and focus to help me through the day. Do you exercise regularly? I know how hard it is when you are feeling awful, but do try.
This disease can be debilitating. Having a plan of going about your day can ease some of the fatigue and brain fog. I wish you well and hope to see you around a bit more. With regards, Rebecca (team member)
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Welcome back!
It's good to hear from you, congratulations on your second child!
It sounds like it has been quite challenging for you.
As we wait for others to chime in here, I thought I'd share this article that may provide some help: https://axialspondyloarthritis.net/living/steering-through-brain-fog.
I wish you all the best as you search for answers and relief.
My best, Doreen (Team Member)
Thanks so much, Doreen!,
You probably think I'm stalking you as I just commented on a previous post. However, I just wanted to check in and see how things are going today.
Sending tons of positive thoughts your way,
Doreen (Team Member)
