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What does a flare look like for you?

Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had small joint problems. For the past 3 years or so I have been having events that pretty much disable me from doing most activities. I will start to get a little pain and stiffness in my lower back and then suddenly, overnight, I will wake up and barely be able to move. It sometimes takes 10 minutes to get out of bed. I can't put on socks or wear anything but shoes that slip on. Getting up and sitting down are very difficult. The last "event" I had lasted a little over a week and I was unable to stand up straight without support and/or walk standing up straight. It was the worst. I had been attributing these back events to other reasons, since I was told 10 years ago that based on my blood test results that I didn't have ankylosing spondylitis, but am now wondering if they might be a flare. Anyone else have similar experiences?

  1. My flares come in many forms. The most recent flare has been quite a monster. Sausage digits anyone? Well, my fingers and toes swelled up to mimic one's favorite breakfast sausages. Enough said.

    1. Alot of what you talked about is true for me! Especially the fatigue. I've said that at that time I can sleep 20 out of 24 hours! Even my husband has noted that I must be in a flare when I get like that.

      1. All the above

        1. Almost to the point of bed rest for at least 85% of my Falres.

          1. oh no ... that must be difficult. How often are your flares? I hope that you find ways to ease the pain and get back on your feet sooner rather than later. Flares can be disruptive and difficult to manage. Sending you healing - Rebecca (team member)

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