What does a flare look like for you?

I was wondering when I read all this and what I put down in March I am still in a flare from then but with some days between feeling reasonably ok? Don’t know if this can happen?
From May so many things happening loads of stress I know but really worse husband my only carer had to get heart checked so that was stressful till we got results that really worried me and hardly slept.
Then the infections came nose infection/ had a white spot dead on my tonsils doctor said so must of had an infection then coughing but had that since 2020 no one knows why had tests negative possibly not right tests I don’t know.
Back and forth to the GPs they are really fed up of me back and forward saying on my notes anxiety/ depression/ anxious etc and all of it doesn’t help, also yesterday app told me I had upper respiratory issues but no antibiotics and GP had his arms crossed, have salty mouth last week, it went it came back yesterday, nose streaming last week never had anything like it, went through three boxes of tissues then it stopped for a couple of days and no salty taste then back again. Blood tests ok but I have to beg for them as in the uk they cost a lot I was told! I found my ESR was up to 15 it was 10 in March so knew inflammation more and CRP up from 1 to 2. The pain is the same no steroids allowed because of osteoporosis yet at an other hospital few years ago I had them, it’s helps with flare but not allowed, most pain meds cause me side effects, then feeling lightheaded for days I said that but said weather probably! Now it’s not sunny or warm have no answers for me.
Just ongoing and now depression no wonder and episode of fresh blood yesterday I rang 111 said you can breathe ok so we are not worried, the uk makes me sick no one listens or understands I rang 999 stuffy nose grrrr what is the bloody point sorry for long post

Often my flare will start with awful GI issues, which come out of the clear blue sky and last for about four days. Not much helps except to stay close to good plumbing. But about 4-10 hours after the start of the GI stuff, and for flares that don't have the GI involvement, the SI joints set themselves on fire, and then then the ischium, what I call my "bum bones" (the ones that you sit on in a hard chair, the ones at the bottom of those loops) joins the party. This causes such burning aching in my entire pelvis, and will send pain down the outside of my thighs. Then the fatigue becomes overwhelming, and I have a couple of days flat in bed.

I'm fortunate to have a wonderful rheumy who will call in a scrip for a month of prednisone with just a phone call, and that gives me a lot of relief very quickly.

I have a lot of trouble with my feet almost always. It's like walking on golf balls. My feet feel broken. I have to walk with shoes, even if only a slipper. Going barefoot is a trial.

Good luck to you. I'll also and that I can avoid a lot of flares by being very careful with myself, my energy, and activities. I can almost always "power myself" beyond my threshold a bit, and always, always pay dearly for that. Air travel is a balancing act!

I have nerve pain in both legs and my buttocks. I really hate this pain. @

More pain/ SI joints waking me and my husband up through the night, especially as older now 66 my bladder needs emptying at 3am arghh/ pain across just above my buttocks/ walking and moving extremely painful.