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What does a flare look like for you?

Hello. I am going through the process of testing for a possible diagnosis. I had previously been diagnosed with RA due to blood test results but have never really had small joint problems. For the past 3 years or so I have been having events that pretty much disable me from doing most activities. I will start to get a little pain and stiffness in my lower back and then suddenly, overnight, I will wake up and barely be able to move. It sometimes takes 10 minutes to get out of bed. I can't put on socks or wear anything but shoes that slip on. Getting up and sitting down are very difficult. The last "event" I had lasted a little over a week and I was unable to stand up straight without support and/or walk standing up straight. It was the worst. I had been attributing these back events to other reasons, since I was told 10 years ago that based on my blood test results that I didn't have ankylosing spondylitis, but am now wondering if they might be a flare. Anyone else have similar experiences?

  1. Just horrible at times.

    1. I an so sorry you are going through this. Do you have the support you need when you are in the midst of a flare? Warmly, Kathy (Team member)

  2. I am new to this disease or should I say the affects, but I have started to recognize flare ups and trying to understand them. I hope I can anticipate & lessen the pain with help from my RA provider.

    1. I'm glad you are here! You may be interested in this article by one of our health leaders about what she keeps handy to help her when she has a flare. All the best, Kathy (Team member)

  3. It's not based on time or season. It's much simpler than that! It follows whenever I have to do a chore, repair, or project that involves any bending, twisting, or reaching. Then I know I'll pay dearly for it for several days or up to about a week.

    1. Thank you for sharing. It's good to know your body and how it will respond. Wishing you a pain-free day today. All the best, Kathy (Team member)

  4. Lots of pain and inflammation. Can’t sleep very long. Nausea is horrible for. A lot of other things that just can’t be controlled or helped in the usual way.

    1. I am so sorry you are experiencing this. Painsomnia (pain + insomnia, or insomnia caused by pain) is horrible. Wishing you a pain-free day and night today. All the best, Kathy (Team member)

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