Coming Out of the "Chronic Closet"To be frank - when I was first diagnosed with AS I was embarrassed. I didn’t know a single person with an arthritic condition aside from my grandmother who was...Reactions0reactionsComments14 comments
A Piece of My HeartI woke this morning around 4:30 a.m. thinking of my father. When I was a child, he was up at the crack of dawn watching the sunrise, drinking his instant...Reactions0reactionsComments3 comments
March Is the Worst Month (and the Best Month)I’m sitting here after a long day of work along with Keegan, my husband with AS, talking about how the weather wrecks his body every spring. For Keegan, while the...Reactions0reactionsComments1 comments
There Is No Universal AS ExperienceOne of the things that really helped me understand and move through some of the grief and confusion of my AS diagnosis was the realization that not everyone with ankylosing...Reactions0reactionsComments4 comments
Self-Care For Spoonies: More Than A BuzzwordThe National Institute on Mental Health says that self-care “means taking the time to do things that help you live well and improve both your physical health and mental health.”...Reactions0reactionsComments4 comments
In Sickness, and in Health“In sickness and in health” is a pretty common wedding vow, I don’t know who wrote it, but their script is a best seller. Brides and grooms say this vow...Reactions0reactionsComments1 comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...Reactions0reactionsComments0 comments
Lifting COVID Restrictions Makes Me NervousIn 2022, everyone is extremely sick of the COVID-19 pandemic. Trust me, so am I. I’m just not so eager to completely get back to normal, and here’s why. I...Reactions0reactionsComments1 comments
Creating Routines With Unpredictable SymptomsCultivating and sticking to a strict routine when your symptoms can change, worsen or arise quite suddenly can be challenging to say the least. I have always been someone who...Reactions0reactionsComments3 comments
2022 SpA Awareness Month Giveaway Terms & ConditionsOfficial Rules, Terms and Conditions for the Spondyloarthritis Awareness Month 2022 Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE...Reactions0reactionsComments0 comments
Returning to Rock ClimbingWhen I was in graduate school, I started dating my future husband, who was a rock climber. After a few months of dating and not seeing him on the weekends...Reactions0reactionsComments6 comments
The Blue Badge of CourageGetting my blue accessible parking pass was a big moment for me. Being able to hang that tag from my rearview mirror was another step in my quest to achieve...Reactions0reactionsComments4 comments
Finally Getting an Appointment at the Pain Management ClinicAfter suffering with months and months of pain, my family doctor decided to send a referral to the pain clinic here in Montreal. I had tried numerous treatments, but nothing...Reactions0reactionsComments8 comments
Lifestyle Changes for Ankylosing SpondylitisWe here at AnkylosingSpondylitis.net have connected with people from all different backgrounds, and with all different experiences. Some people who come to our community prefer to use biologics and other...Reactions0reactionsComments1 comments
Becoming ButterfliesThe idea of raising butterflies never crossed my mind until I spotted two mature Eastern Black Swallowtail caterpillars lazily munching away on the fennel in our kitchen garden. Their cheerful...Reactions0reactionsComments4 comments
AS Pregnancy, the Never-Ending Flare, and Being a Medical UnicornEditor's note: Read part 1 of Erin's journey here. They say that the second trimester is supposed to be the easiest and most enjoyable part of pregnancy. For me, the...Reactions0reactionsComments4 comments
Having AS and Fibromyalgia in a RelationshipRecently, I have been thinking about my relationship with my partner. Specifically, I'm thinking about how having AS and fibromyalgia has affected our relationships. My partner is always kind and...Reactions0reactionsComments9 comments
Finding a Hobby That Works With Your LimitationsIt’s heartbreaking watching your body slowly deteriorate and transform into something you don’t even recognize anymore. Many of us used to be healthy and active-—I know I was. I could...Reactions0reactionsComments6 comments
Living, Working, Experiencing DisabilityWhen you are someone who experiences disability, there are many barriers that you face in your everyday life. There is a lot of people living with disability who want to...Reactions0reactionsComments4 comments
5 Ways We Can Reduce the Impact of our AS SymptomsSo, you’ve been diagnosed with AS. You’ve had all the x-rays, the MRIs, and the bloodwork. You’ve endured poking, prodding, and you’ve bent down to touch your toes oh so...Reactions0reactionsComments5 comments