Coping with Mental Health and Axial Spondyloarthritis: My StoryEverybody has experienced the toll a chronic illness can have on your mental health in one way or another. Being in constant...reactions4comments
Birthday Planning the AxSpa WayMy daughter and husband's birthdays are a day apart. My daughter was born on February the 10th, and my husband was born on...reactions5comments
To Go Out or Not to Go Out?Last night, my husband with AxSpa, Keegan, went out for a creativity circle gathering at our Unitarian Universalist church. He’s been struggling...reactions12comments
A Look Back at Seven Years With ASThis past winter marked my seven-year diagnosis anniversary with ankylosing spondylitis. My how time flies! While my official diagnosis came seven years...reactions2comments
Tips for Managing at Work With AxSpaSome of the biggest challenges with AxSpa can present themselves in the workplace. Only a small percentage of people are financially independent...reactions1comment
Living With AxSpA, Deciding to Have Children, and Genetic CounselingHaving children was never my top priority in life. Being a teenager, talking with my girlfriends about life plans, we had different...reactionscomments
Remission is Reversing My Acceptance of My Chronic IllnessChronic illness doesn’t come into a person’s life in a convenient, ready-made package. It arrives in a series of disjointed boxes that...reactions2comments
What’s in Keegan’s Flare-Up Kit?Do you have a flare-up kit? If not, I highly recommend it. We never consciously thought about putting a flare-up kit together...reactions10comments
I Tried "Yoga for AS"Many years ago, I walked into a sweaty, crammed group yoga class on Saint Marks Place here in New York City. It...reactions3comments
How Disability Theories Exclude People with Chronic PainDisability is a complex topic, so naturally, there are many ways to think about it. The disabled community has different ideologies —...reactions3comments
City Living With A Chronic Illness, Part 1I’ve been thinking a lot about accessibility and disability as I work on my third non-fiction book, City Witches. The book is...reactions2comments
AxSpA Pain ManagementFirst of all, managing pain is different for everyone. During my journey, I quickly learned there is a lot of trial and...reactions3comments
The Inconsistency of My Illness Causes Me FearWhen it comes to chronic illness, no two days are the same. The inconsistency and unpredictability that come with a chronic illness is what gets...reactions4comments
My Experience on TaltzTaltz is not my first biologic on my journey to finding the right treatment. My first biologic was Cimzia, but my rheumatologist...reactions2comments
My nr-AxSpa Biologic Journey: Part OneSince being diagnosed with non-radiographic axial spondyloarthritis in 2018, I have tried four separate biologics at various times. I am telling you...reactions7comments
Returning to Rock ClimbingWhen I was in graduate school, I started dating my future husband, who was a rock climber. After a few months of...reactions6comments
My nr-AxSpa Biologic Journey: Part TwoEditor's note: Read part one of Pamela's journey here. The next step in my biologic journey was Cimzia. First, the bad news:...reactions2comments
My Cosentyx HangoverAs time goes by, I'm getting less and less nervous injecting! I never, ever thought that I would be saying this. But...reactionscomments
Quitting SmokingI know it is not exactly breaking news that smoking cigarettes is bad for your health. However, you may not know that...reactions9comments
Getting a Degree With AS I started college before my AS symptoms started. I was lucky enough that my AS symptoms started during lockdown as college lectures...reactions2comments
