Flare-ups, Alcohol, And Big Life Changes: The ResultsFor the past month and a half, I've been on a health journey provoked by an intense flare-up (see part 1 of this story) that caused my worst-ever flare-up and...reactions1comment
Wake-Up Call: Flare-ups, Alcohol, And Big Life Changes: Part 1I went to Europe for Christmas (as I've done for the past seven years) to be with my partner's family, and it was — to put it 100 percent honestly...reactionscomments
Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is. But with good support always comes some not-so-good...reactions2comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have found myself feeling more inclined than ever to...reactionscomments
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but people barging in on my carefully planned dinner...reactionscomments
Avoiding Cabin Fever During The CoronavirusThe last week has really turned in Philly: schools are closing, offices are encouraging workers to work from home, and the first case of coronavirus was confirmed. In the midst...reactionscomments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic illness communities if people were having a hard...reactions1comment
My AS Life Before DiagnosisI know I’m considered to be one of the lucky ones. From the onset of symptoms to diagnosis, it took one full year. Kudos to those of you that dealt...reactions4comments
I Did Everything Right and Still Got a DiseaseI was recently scrolling through Instagram when I saw a post from a self-proclaimed fitness coach. It said: “No disease is inherited! Laziness causes disease, treat your body right!” First...reactions5comments
If I Can Turn Back TimeEvery day, I wake up hoping today will be a different day. Hoping that today, will be a better day, then the day before. But once I open my eye...reactionscomments
My AS and Travel AnxietyBefore I had AS I loved to travel. I still absolutely love traveling, but now I get terrible anxiety before every trip. I get stomach aches, panic attacks, cry, and...reactionscomments
Adapting To the Disappearance Of Restful SleepIt feels like common knowledge that the right amount of sleep can help with productivity, brain functioning, and maybe even help you live longer. However, for those of us with...reactions6comments
Extra(ordinary): ASers Can Do It AllLet my words go forth from this day and place. We, the people living with ankylosing spondylitis, are extra(ordinary)! (Meaning, our “ordinary” is way more than a little “extra.") We...reactions5comments
My Husband's AS Flare SymptomsI've been part of the Ankylosing Spondylitis community now for a few months. Something that's stuck out to me from reading comments is how different flare-ups feel for each person...reactions13comments
Living With AS: An Interview With Jed FinleyI recently had the pleasure of speaking with AnkylosingSpondylitis.net contributor Jed Finley for the podcast Living With, which explores what it's like to live with a chronic condition. In this...reactions6comments
Ask the Advocates (Part 2): Explaining ASSteff: I had never heard of AS or anything other than just “arthritis” before I was diagnosed. After I was diagnosed, my rheumatologist gave me a pamphlet about AS, and...reactions3comments
Post-Holiday Care for ASI don’t know about you, but the holidays exhaust me. I don’t even have a big family. We see my dad’s side for Christmas Eve, and then it’s just us...reactions3comments
I Am More Than My Diagnosis: A Year in ReviewAs this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019 comes to a close and a new year...reactions1comment
My 2020 AS GoalsThe year 2019 is done for (thank god) and a new decade is upon us. I usually don’t get super excited for the new year, but 2019 was one of...reactions1comment
My Holiday Hibernation ChecklistI can't be the only one jealous that bears get to spend most of the holidays hibernating in caves. They go sauntering into their caves, easy as they please to nap...reactions1comment