My Biologic Stopped Working For MeI was on Remicade for a total of 2 years. At first, it helped me tremendously. Now it’s stopped helping me altogether. The beginning of my treatment process was amazing...Reactions0reactionsComments21 comments
Developing Your Fatigue Response Plan, Part 2: The BasicsSpondyloarthritis has lots of things going for it as far as treachery goes. It's hard to pronounce. People don't know what it is or mistakenly think it's rare. It's seronegative...Reactions0reactionsComments2 comments
Today Was a Tough DayToday was a tough day. I woke up at 5:30 am only to toss and turn until my alarm went off at 6:30 am. It’s been a rough couple of...Reactions0reactionsComments2 comments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...Reactions0reactionsComments0 comments
After Much Reluctance, I Tried CBD For AS And AnxietyOver the past few months, my ankylosing spondylitis has been flaring up. I definitely think the global pandemic and being in quarantine has contributed to this, since I’m not able...Reactions0reactionsComments16 comments
Other Health Conditions Experienced Alongside LupusThe journey to receiving a lupus diagnosis can be a long one. The symptoms of lupus can be nonspecific and overlap with many other conditions. Because of this, it can...Reactions0reactionsComments0 comments
Food Allergies, Gut Inflammation, And AxSpAScientists do not fully know how food allergies affect inflammation in axial spondyloarthritis (AxSpA). However, researchers believe there is a link between gut health and AxSpA. Food allergies have a...Reactions0reactionsComments2 comments
In America: What’s That?Axial spondyloarthritis (AxSpA) is so much more than just back pain. To learn more about the challenges of living with AxSpA, we are conducting our In America survey. By taking...Reactions0reactionsComments3 comments
Ask The Advocate: How PsA Impacts Daily LifePsoriatic arthritis can change how you live your life every single day. This condition is the center of the wheel that outreaches to all different aspects of life: physical and...Reactions0reactionsComments0 comments
The Strobe Light of Chronic Illness – How Others See Only Small SnapshotsI was watching a cop show the other day and one of those obligatory, “drug addled-club goers rave” scenes came on. You know, the one that shows what Hollywood thinks...Reactions0reactionsComments0 comments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious or stressed. Maintaining our connection to nature can improve one’s quality of life and...Reactions0reactionsComments0 comments
"Coming Out" As A Sick PersonMy first instinct as a newly diagnosed person with AS (a type of axial spondyloarthritis) was to hide it. I was confused, relieved, upset, depressed, just about every emotion. I...Reactions0reactionsComments1 comments
Flash Giveaway for Spondyloarthritis Awareness Month!In honor of Spondyloarthritis Awareness Month 2020 and the launch of our community, our sister-site AnkylosingSpondylitis.net is offering a FLASH GIVEAWAY ENTRY for their Spondyloarthritis Awareness Month Giveaway. The giveaway...Reactions0reactionsComments0 comments
“But You Don’t Look Sick”The thing about living with a sometimes-invisible disease is that it sort of feels like it's you against the world. You're living with this secret, this shadow, this double-life —...Reactions0reactionsComments0 comments
Feeling Behind Because Of ASSince being diagnosed with AS back in 2018, I’ve felt a lot of different ways about it. I’ve felt grief, gratitude, depression, just about every feeling really. Lately, I’ve been...Reactions0reactionsComments2 comments
Brain Fog: The Impact of RA on Mental FunctioningResults from the 2019 RA In America Survey showed that 61 percent of survey participants living with RA experienced brain fog within the last month of taking the survey. Along...Reactions0reactionsComments0 comments
Mental Health Month 2020: Not Just In Your HeadFor a long time, we said mental health happens in the mind and the body is just along for the ride. People who’ve experienced stress, anxiety, depression, or even minor...Reactions0reactionsComments0 comments
The Humira HangoverSince Keegan, my husband with AS, began taking Humira over 2 years ago, he's always talked about a "Humira hangover." He'd describe it as a small period of time where...Reactions0reactionsComments28 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...Reactions0reactionsComments0 comments
4 Self-Advocating TipsWhen suffering from such a mysterious illness, you are often required to see multiple doctors that specialize in different things. I can definitely get a little messy at times. This...Reactions0reactionsComments4 comments