Weathering the Storm: Getting Through Joint Pain During Weather ChangesKeegan knows when a storm is coming, and often more accurately than what my iPhone weather app tells me. Changes in the weather, particularly large shift in temperature, pressure, and/or... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments11 comments
My Nighttime Routine For Emergency SituationsThe summer of 2019 was the most stressful time of my life. I put The Dude (my elderly uncle and Ward) on hospice, sold his house on an emergency basis... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Trip To The Zoo: An Accessibility Learning ExperienceIf you read my article “The River Denial” (all about the difficulty of asking for and accepting accommodations) you read that I was planning on taking my wheelchair to the... By Jed Finley4 min readBookmark for laterReactions 0 reactions Comments1 comments
What an AS Flare is LikeIf you don’t deal with chronic pain or illness, you’re probably wondering what it’s actually like to experience a flare-up. Lucky for you, I’ve been through enough for a lifetime... By Steff Di Pardo3 min readBookmark for laterReactions 0 reactions Comments41 comments
Having AS and Always Fighting for YourselfI'm writing this article to air a frustration I have with something a lot of us with AS have to deal with. I feel like I’m constantly fighting for myself... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments0 comments
Spondylitis Communication 103: ClarityHave you ever fallen asleep watching one movie and woke up to another? One minute Harrison Ford is Indiana Jones, then you pull that soft blanket up under your chin... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Three Unnerving Questions Most ASers Ask ThemselvesThe notion that people could fake a disability is widely held in our culture. Maybe it's a form of denial around life changing illness and disability? Maybe it's because we... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Yes, the Pain is That BadI'm naturally a highly empathic person. In my research of ankylosing spondylitis, I kept reading about the chronic pain but wanted to know more. How painful is it really? What... By Auldyn Matthews2 min readBookmark for laterReactions 0 reactions Comments5 comments
“Shawn” Feels Guilty About Her SpondylitisImagine a spondylitis patient called Shawn. She's an African-American forty-something that most people think younger because she's prone to giggling, can't stop retweeting anything with frolicking otters, and wears lip... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments
Why Am I So Open?I feel like a lot of people that follow me on social media probably wonder “Why is she so open about everything?”. Why do I talk so much about my... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments0 comments
Planning For Self-Care Success: Three Good ThingsLiving with AS can feel like a buzz saw merry-go-round. The saw blades are composed of the health issues and symptoms we're fighting back against. The merry-go-round, a mash-up of... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments1 comments
Ask the Advocates: CopingIf you had to pick 1 aspect of your life that has been most affected by AS, what would it be and how have you coped with that? If I... By anthony.carrone3 min readBookmark for laterReactions 0 reactions Comments0 comments
Guided MeditationMeditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain, increase positive emotions, and improve memory and concentration... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving Ankylosing Spondylitis: The WorkplaceHow to work it, when your body won't work... If you take a poll of the ankylosing spondylitis community, you will find that employment is a real trouble area. Most... By Jed Finley5 min readBookmark for laterReactions 0 reactions Comments4 comments
How to Advocate for Someone With ASAt 23, I became a caregiver when my husband Keegan was bedridden from nonstop pain and immobility. Immediately finding oneself in the caregiver role, it's hard to know the skills... By Auldyn Matthews3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Flare EssentialsI’m currently going through a hip flare-up, so I decided to write this post about my flare go-to’s, or my essentials for getting through a flare. These essential items help... By Steff Di Pardo2 min readBookmark for laterReactions 0 reactions Comments10 comments
Nightmares and Their Link to Inflammatory ArthritisAuthors of a study published in Brain and Behavior in March 2019 reported an unexpected discovery. Researchers were originally investigating the link between inflammatory arthritis, like ankylosing spondylitis, and an... By TK Sellman2 min readBookmark for laterReactions 0 reactions Comments5 comments
10 Things You Should Know About Clinical TrialsEach year thousands of clinical trials occur. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Why I Have A Wheelchair: The Game Of "What If's"I am a proud wheelchair owner. I am not, as of yet, a wheelchair user. Why is this? Well, I have my reasons. Living with AS is unpredictable. Good days... By Jed Finley2 min readBookmark for laterReactions 0 reactions Comments9 comments
Seven Ways To Stay Safer With SpondylitisSometimes living with spondylitis feels like I'm on a bizarre game show. Where I'm the host and the medical community are contestants. We understand the topics and questions, but the... By Dawn Gibson2 min readBookmark for laterReactions 0 reactions Comments2 comments