Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is...reactions2comments
The Coronavirus Just Hit NYC, And I'm Feeling FrightenedI just got off the phone with a reporter from TheLos Angeles Times. They were asking people in the disability and chronic...reactions1comment
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but...reactionscomments
Why Am I So Open?I feel like a lot of people that follow me on social media probably wonder “Why is she so open about everything?”...reactionscomments
Post-Holiday Care for ASI don’t know about you, but the holidays exhaust me. I don’t even have a big family. We see my dad’s side...reactions8comments
I Am More Than My Diagnosis: A Year in ReviewAs this community and our sister communities grow, one universal truth is clear: people are more than just their diagnoses. As 2019...reactions1comment
My Holiday Hibernation ChecklistI can't be the only one jealous that bears get to spend most of the holidays hibernating in caves. They go sauntering into...reactions1comment
New Year WishesI love Christmas. I love everything about it. The joy, the social gatherings, the music (come at me, Michael Buble!), the food...reactions6comments
Spondylitis Communication 104: Your Personal PolicyHave you ever seen a high drama press conference? They tend to follow a formula. Something big happened and we know that lots of...reactions4comments
Writing Poetry About AS: How and Why It HelpsI'm not sure if you know this, dear reader, but my background is in poetry! I got a Master's degree in writing...reactions2comments
What Bothers Us The Most About AS?Lately, I’ve been experiencing an SI joint flare-up. I’ve had the fatigue, the difficulty moving around, the all-over pain, and just about...reactions2comments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often: Adverse event: an...reactionscomments
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria)...reactionscomments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or...reactionscomments
My Nighttime Routine For Emergency SituationsThe summer of 2019 was the most stressful time of my life. I put The Dude (my elderly uncle and Ward) on...reactions2comments
Having AS and Always Fighting for YourselfI'm writing this article to air a frustration I have with something a lot of us with AS have to deal with...reactionscomments
Spondylitis Communication 103: ClarityHave you ever fallen asleep watching one movie and woke up to another? One minute Harrison Ford is Indiana Jones, then you...reactions2comments
Three Unnerving Questions Most ASers Ask ThemselvesThe notion that people could fake a disability is widely held in our culture. Maybe it's a form of denial around life...reactions2comments
Planning For Self-Care Success: Three Good ThingsLiving with AS can feel like a buzz saw merry-go-round. The saw blades are composed of the health issues and symptoms we're...reactions1comment
Guided MeditationMeditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain...reactionscomments
