A Day In The Life Of Someone With Ankylosing SpondylitisOne thing I find most people don’t understand when learning about AS is the fact that it affects every aspect of our lives. Daily life is made so much more...reactions7comments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...reactionscomments
My Anxieties with COVID-19I’m sure most of us are very anxious with COVID-19 having stuck around for this long. When first hearing about it, I didn’t think it would actually make it to...reactions1comment
How AS Has Affected My Financial SituationI’ve struggled a lot financially since my symptoms of AS first started. As I’ve mentioned before, I had to quit my job, which has left me without a steady income...reactions5comments
A Look at the Services Virtual Care OffersTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...reactionscomments
Exercise And Mental HealthExercise and mental health. The two go together like birds of a feather. Like macaroni and cheese. Like tea and biscuits – as they say here in the UK. I’ve...reactions1comment
ACR Guidelines For Infusions During COVID-19New guidelines from the American College of Rheumatology (ACR) recommend ways to manage infusion services during the COVID-19 pandemic. They also explain what doctors must consider when deciding to give...reactionscomments
Axial Spondyloarthritis Flares: What To Know, How To CopeIf you have axial spondyloarthritis (AxSpA), you know how painful a flare can be. What exactly is an AxSpA flare? What can you do to take care of yourself when...reactions1comment
COVID-19 Updates, April 7: Face Coverings, Testing, & MedicationsIt is common to feel overwhelmed about COVID-19: so much information changing day-to-day. Here are some of the important COVID-19 stories that may be applicable to people living with one...reactionscomments
Humira As Treatment For AS: My ExperienceWhen I was 18 years old, I developed ankylosing spondylitis (AS), a genetic autoimmune disease that causes inflammation of the spine. The main symptoms of AS include joint pain and...reactionscomments
The Good Enough CaregiverFor years at the end of the day, I'd sit down on the couch exhausted. I'd look over to my husband, Keegan, who was diagnosed with AS 5 years ago...reactionscomments
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study...reactionscomments
Flare-ups, Alcohol, And Big Life Changes: The ResultsFor the past month and a half, I've been on a health journey provoked by an intense flare-up (see part 1 of this story) that caused my worst-ever flare-up and...reactions1comment
Wake-Up Call: Flare-ups, Alcohol, And Big Life Changes: Part 1I went to Europe for Christmas (as I've done for the past seven years) to be with my partner's family, and it was — to put it 100 percent honestly...reactionscomments
Support Is Essential During COVID-19With all of the panic going around surrounding the COVID-19 virus, I’m sure you’ve noticed how helpful a good support system is. But with good support always comes some not-so-good...reactions2comments
I'm At Risk, Too: Sharing Our Diagnoses During COVID-19As the terms “immunocompromised” and “suppressed immune system” flow through social media and news outlets linked to conversations surrounding COVID-19, I have found myself feeling more inclined than ever to...reactionscomments
COVID-19: Tips To Reduce Your RiskWith all of the news circulating about the novel (new) coronavirus, it can be easy to feel overwhelmed or anxious. This is especially true if you are immune-compromised due to...reactionscomments
COVID-19 Basics for the Immune-CompromisedFor those living with chronic health conditions, current news about the coronavirus (COVID-19) can be anxiety-inducing. We have questions and concerns about how the virus is transmitted, how it can...reactionscomments
FDA Makes Way for Experimental Drugs to Fight COVID-19On March 19, the U.S. Food and Drug Administration (FDA) approved the testing of two drugs, chloroquine (hydroxychloroquine) and remdesivir, to treat people with COVID-19. The drugs have been given...reactionscomments
Developing Your Fatigue Response PlanHave you ever had uninvited guests gate crash your holiday gathering? I like to think of myself as warm and welcoming, but people barging in on my carefully planned dinner...reactionscomments