Spondylitis Communication 104: Your Personal Policy...Have you ever seen a high drama press conference? They tend to follow a formula. Something big happened and we know that lots of uncomfortable and repetitive questions are about to fly...reactions4comments
Writing Poetry About AS: How and Why It Helps...I'm not sure if you know this, dear reader, but my background is in poetry! I got a Master's degree in writing (yes, I do have regrets), I've published several...reactions2comments
AS Flare Relief with MMJ...I'm 42 years old. I was diagnosed with ankylosing spondylitis at age 31. It had already changed my life because I was already in chronic pain every day. I still...reactions4comments
My Long, Unique Journey...I was born with several orthopedic issues including too many bones and no muscles connected to my spine on the right side. I also had spina bifida. The doctors in...reactions2comments
Realizing AS Changes Everything...Growing up, I had heard of others in my family being diagnosed with serious and life-changing illnesses, but they were older. That's when life deals that card to us. It's...reactions5comments
What Bothers Us The Most About AS?...Lately, I’ve been experiencing an SI joint flare-up. I’ve had the fatigue, the difficulty moving around, the all-over pain, and just about everything else. I started to wonder what other...reactions2comments
How To Get The Most Out Of Doctor Appointments...Medical appointments seem simple enough: just book, show up, be seen, and follow up, right? Wrong! For many of us, patient care may as well be happening on the dark...reactions7comments
Weathering the Storm: Getting Through Joint Pain During Weather Changes...Keegan knows when a storm is coming, and often more accurately than what my iPhone weather app tells me. Changes in the weather, particularly large shift in temperature, pressure, and/or...reactions11comments
Remicade Is Expensive But It Works For Me...I was on Humira, but I have been on Remicade for bout 2 years now and I love it. It has relieved my pain so much like you wouldn't believe...reactions2comments
My Nighttime Routine For Emergency Situations...The summer of 2019 was the most stressful time of my life. I put The Dude (my elderly uncle and Ward) on hospice, sold his house on an emergency basis...reactions2comments
Acceptance of Life Changing with Ankylosing Spondylitis...From a young age, I knew I would at some point have problems with my back as scoliosis is quite dominant in my family. However, I didn’t quite expect to...reactions4comments
Finding an AS Community Who Understands...I'm glad to have found a community that knows what I'm going through. I have been diagnosed with AS (Ankylosing Spondylitis). I had been telling my primary that something was...reactions2comments
FeaturedHow do you manage romantic situations?...I have terrible hip and pelvic pain, how do I explain why I can't be in a physical relationship?...reactions4replies
My Trip To The Zoo: An Accessibility Learning Experience...If you read my article “The River Denial” (all about the difficulty of asking for and accepting accommodations) you read that I was planning on taking my wheelchair to the...reactions1comment
What an AS Flare is Like...If you don’t deal with chronic pain or illness, you’re probably wondering what it’s actually like to experience a flare-up. Lucky for you, I’ve been through enough for a lifetime...reactions49comments
Terrible Pain from Ankylosing Spondylitis...I am a 51 yr old female. My whole life has been turned upside from this! Not only do I suffer regularly and stay depressed but I lost my career...reactions1comment
Misunderstood, But At Lease We Have Each Other...It’s hard to know where to start. I have had back problems since my late teens. I ended up having a ruptured disc, thanks to a chiropractor and had back...reactions2comments
The Longest, Crazy Journey...For years, I have seen so many doctors just to be told, it is all in your head. Sure I get various diagnoses yet the problems persisted. Now, I am...reactions2comments
My Journey of Medical Madness...I am 45 years old and have ankylosing spondylitis, Crohn's disease, chronic migraine, and autonomic neuropathy, among other things. Right now I am in an AS flare and have to...reactionscomments
Family Affair!...I watched my grandmother and mom suffering from fatigue, Dr visits, meds and chronic pain for many years. Thirty years ago it started on me....fatigue, multiple different Drs, MRIs, meds...reactionscomments
