Ouch...The pain is too much, I can’t live like this no more. No one can help, doctors can’t figure out what’s wrong, bridge jumping time, bye... Who remembers saying that?...Reactions0reactionsComments7 comments
Has anyone tried a spinal cord stimulation system?...My doctor would like me to try a spinal cord stimulation system. I am wondering if anyone else has one and if it helps....Reactions0reactionsComments1 replies
X-Rays and MRIs...Is it possible for AS not to show up on x-rays and MRI's?...Reactions0reactionsComments1 replies
Can't Take Much More Bouncing From Doctor to Doctor...I am a 52-year-old male with a colored history of medical issues. I'm number 4 in a family of 6 males and I seemed to be the one with all...Reactions0reactionsComments1 comments
Beginning My Journey with Ankylosing Spondylitis and Chronic Pain...I am a 60-year-old man. I have been looking for answers to all the pain I have been having for the last 2 years. My rheumatologist who I have met...Reactions0reactionsComments2 comments
Yes, the Pain is That Bad...I'm naturally a highly empathic person. In my research of ankylosing spondylitis, I kept reading about the chronic pain but wanted to know more. How painful is it really? What...Reactions0reactionsComments6 comments
“Shawn” Feels Guilty About Her Spondylitis...Imagine a spondylitis patient called Shawn. She's an African-American forty-something that most people think younger because she's prone to giggling, can't stop retweeting anything with frolicking otters, and wears lip...Reactions0reactionsComments2 comments
My Medical Journey...It's been a long, trying, and difficult journey. I'm still searching for answers. Since I was young, I always had a bad immune system. So, I would catch everything, mostly...Reactions0reactionsComments2 comments
Ivey’s AS Story...I was always extremely energetic until I moved to college at the age of 19. I began to lose all of my energy and pain in my hips started to...Reactions0reactionsComments1 comments
Why Am I So Open?...I feel like a lot of people that follow me on social media probably wonder “Why is she so open about everything?”. Why do I talk so much about my...Reactions0reactionsComments0 comments
Planning For Self-Care Success: Three Good Things...Living with AS can feel like a buzz saw merry-go-round. The saw blades are composed of the health issues and symptoms we're fighting back against. The merry-go-round, a mash-up of...Reactions0reactionsComments1 comments
Ask the Advocates: Coping...If you had to pick 1 aspect of your life that has been most affected by AS, what would it be and how have you coped with that? If I...Reactions0reactionsComments0 comments
Diagnosed. Then, Not?...A respected rheumatologist in FL diagnosed me with this disease after extensive testing. Then, a year later, I was transferred to another doctor due to insurance. That specialist said he...Reactions0reactionsComments3 comments
Guided Meditation...Meditation has been shown to have multiple benefits on a person’s health, both physical and emotional. Regular meditation can help relieve pain, increase positive emotions, and improve memory and concentration...Reactions0reactionsComments0 comments
My Story: Multiple Diagnoses...I was just diagnosed at 43. I have a long list of autoimmune diseases. Now this!?! Extreme back pain. Praying the RFA gives me some relief. I’m open to any...Reactions0reactionsComments1 comments
Surviving Ankylosing Spondylitis: The Workplace...How to work it, when your body won't work... If you take a poll of the ankylosing spondylitis community, you will find that employment is a real trouble area. Most...Reactions0reactionsComments4 comments
I Have Lupus...Lupus aggravates my AS and or complicates treatment options....Reactions0reactionsComments1 comments
Aggravated AS Story...I was 50 years old when diagnosed. I am and have always been very active with my family and in my community. I was also fired from my job of...Reactions0reactionsComments1 comments
Ankylosing Spondylitis: Finding the Right Treatment for Me...Hi, I’m Becky and I'm 48 yrs old. I was diagnosed with AS in 2018. I have tried Humira and Cimzia but they didn’t help. Now my rheumatologist has me...Reactions0reactionsComments1 comments
Will an MRI Detect Ankylosing Spondylitis?...I was told I had AS. I have the same symptoms. But the doctor did the blood test for HLA-B27 and it came back negative. Others have told me not...Reactions0reactionsComments3 replies
