Active 3 days agoGot my 2nd round of Aria Simponi today...I can't wait to see how I feel in the morning. Hope it last until June!...Reactions0reactionsComments0 repliesAnkylosing Spondylitis
Active 5 days agoProcedures ...Anyone had cortisone shots and burning nerve ending in their back? If so did it help?...Reactions0reactionsComments0 replies
Can Alcohol and AxSpa Party Together?...I used to be quite a party animal before I was diagnosed with axial spondyloarthritis! When I studied in France at uni, I would go out on Friday and Saturday...Reactions0reactionsComments4 comments
Epidural...my pain specialist has added cervical nerve disorder and degenerative arthritis of the neck to my docket. he wants to try an epidural injection to treat the pain in my...Reactions0reactionsComments0 repliesTreatmentAxial Spondyloarthritis Alternative Treatment
RA is making life worse ...I've had OA for years and now I have RA making things worse. Now there's something else?...Reactions0reactionsComments1 replies
Active 3 days agoHidden disability ...I am so sick of people judging me for having a blue parking badge. Because I look fine they think I'm fine and I'm not. I have Scwmanns Disease. Ankylosin...Reactions0reactionsComments3 replies
"Blessed by B27"...Hello, my name is Simon, and I am 45 years old. Since 2019, I have been suffering from spinal arthritis with the B27 antigen. It all started with swelling in...Reactions0reactionsComments3 comments
The Marine Story...Today, I am a disabled Marine veteran in my 70s, experiencing pain in my lower and upper back that began in 1975. I became aware of the pain while at...Reactions0reactionsComments0 comments
The Weather Is Changing and I'm in Pain...Last week the temps were in the 50s, then the 30s, and on Sunday, it was 77! It’s going to be 20 and 22 then slowly warm up 🤷♂️ Today...Reactions0reactionsComments0 comments
I've had pain from AS before. but this time it's worse...I thought I was developing bursitis because of hip pain and limited mobility. However, after a few days, it changed. Unlike anything I ever felt before, I stared to fall...Reactions0reactionsComments4 replies
How I Manage My AxSpa Without Biologics (part 2)...This is a continuation of How I Manage My AxSpa Without Biologics: Nutrition and Movement. In the first part, I talked about my decision not to take biologics and the...Reactions0reactionsComments0 comments
How To Communicate To Someone That They Hurt Your Feelings...One of the hardest lessons I've learned over the years is the importance of communicating your feelings, especially when hurt by a friend or family member. When living with axial...Reactions0reactionsComments2 comments
FeaturedFlight tips...Hi all I am due to go on holiday tomorrow and unfortunately I am dreading the long 11 hour flight and wondering if I will actually be able to enjoy...Reactions0reactionsComments6 repliesAnkylosing SpondylitisTips & AdviceTravel
New AS diagnosis and lost...Hi. I recently have been diagnosed with AS. I don’t have another appt until April. However I was given Diclofenac as a pain killer and it does not work! Does...Reactions0reactionsComments1 repliesAnkylosing SpondylitisCommunity SupportCoping
Hot Water - I’m in it all the time. Lol...I have a question : Has anyone noticed that your skin is more sensitive when you take a shower ? I have to turn the Hot water way down or...Reactions0reactionsComments6 replies
Learn the WIM HOF METHOD to reduce inflammation...15 years ago, I was diagnosed with ankylosing spondylitis (AS), a type of arthritis that causes inflammation in certain parts of the spine and the sacroiliac joint. Since I started...Reactions0reactionsComments4 repliesAxial Spondyloarthritis Alternative TreatmentAnkylosing Spondylitis
Temporary disability in South Africa...I have been put on 6 months temp disability leave by my Rheumie and I have found my employer to be so unsupportive. I am now on my 2nd month...Reactions0reactionsComments1 repliesWork & Employment
How I Manage My AxSpa Without Biologics: Nutrition and Movement...2025 marks 10 years since my AxSpa diagnosis! What a journey! Once I got the diagnosis, my rheumatologist suggested strong anti-inflammatory medication, which helped with symptoms at first, but after...Reactions0reactionsComments2 comments
New Non-opioid Pain Pills Approved By FDA...I thought this is excited News and wanted to share it with you . It will Allow anyone who were afraid to take Opioids an option to help with their...Reactions0reactionsComments2 replies
Reviews of bio meds ( RIVOQ) ...Hello, i am new here, i was diagnosed about 5 years ago which they said was called chronic Bilateral Sacroiliitis and on MRI it showed unactive, 4 years later i...Reactions0reactionsComments3 repliesAnkylosing SpondylitisAlternative TreatmentCommunity Support
