Active 5 days agoNeck pain, hard time sleeping... Advice??...Long story short... 2025 has been the worst year, I think... of my life. Never saying "This is going to be my year" again. First time ever saying that and...reactions4repliesAnkylosing SpondylitisCommunity SupportSleep
Active yesterdayHyrimoz - GERD Increase ...Anyone else notice crazy heartburn and burping after Hyrimoz injection? I have GERD and it's not normally this bad. I take meds for it, but it seems worse since the...reactions3repliesNon-Radiographic Axial SpondyloarthritisSide EffectsTreatment
What helped after spine fusion surgery?...I have been dealing with two slipped discs since March. It has finally come down to fusion between L4 - L5 and decompression from L3 - L5. The slipped discs...reactions1reply
Managing anxiety around starting a biologic ...Hi, I am 29 years old and was diagnosed 5 years ago with Axial spondyloarthritis and was managing quite well on an NSAID (Etoricoxib). Unfortunately over the last year my...reactions1replySide EffectsCopingAxial Spondyloarthritis
My Chart & other electronic communications...How do you feel about communicating with your doctor with MyChart or similar computer based platforms? Does it make things easier on you or do you prefer talking to your...reactionsreplies
Reflecting on Disability Pride Month as a Person With AS...July was Disability Pride Month, which I had never heard of before I was diagnosed with ankylosing spondylitis. Now, I really look forward to it each year. These are my...reactionscomments
Am I able to fly, I’m planning to go on holiday next month....Hello, I was diagnosed with AS 18 months ago. I’ve been planning to go on holiday for a while now and I just want to make sure it’s safe for...reactions1replyAxial Spondyloarthritis
Active 7 days agoStruggling without the medication...I recently had to stop taking my immunosuppressant. It's only been three days and I feel like I'm not going to make it. I'm trying not stress myself out, but...reactions1replyAnkylosing SpondylitisVentingCoping
How to tell if it’s AS/ fibromyalgia or Mechanical back pain.....How to tell if it’s AS/ fibromyalgia or Mechanical back pain. The differences in pain and inflammation and discomfort.? For the last five days have been doing a short walk...reactions4repliesComorbiditiesFlare ManagementAnkylosing Spondylitis
How old were you when you received your diagnosis? How did it make you feel? ...Hello Everyone! My name is Arianna, I’m a 24 year old woman who was very recently diagnosed with AS. I’d like to preface this by saying that I always thought...reactions2repliesCommunity SupportAnkylosing Spondylitis
Enthesitis Flares ...I have a lot of lower body flares and currently taking Remicade...waiting for it to kick in. Has anyone found immobilization helpful (bracing/casts) when in an acute stage of a...reactions9repliesFlare ManagementFlares Ankylosing Spondylitis
I'm 99% sure I've had this since a teenager!...🥲🥲🥲🥲🥲🥲 I was recently diagnosed with ankylosing spondylitis at the age of 50 (I'm 51 now), and looking back at my life, I realised that I'VE HAD THIS SINCE I...reactions1replyFatigue Newly DiagnosedRadiographic Axial Spondyloarthritis
Ankey losing spondylitis treatment ...Hey ankey losing spondylitis has treatment in ayurveda. It's my personal experience. I had it when I was teen. At age of 28 I got ayurvedic treatment and with in...reactions2replies
Help/ Advice ...HI, I'm a 42 year old father of 4 and could really use some advice. I live in the UK and have a family history of AS. I'm HLA-B27+ and...reactions1replyCommunity Support
Anklosing Spondylitis diagnosis ...I have suffered from back pain for years. About 10 years ago I was sent to a Rheumatologist. Due to my symptoms and the fact I do have the AS...reactions1reply
Medical alert bracelets ...I bought one for myself recently because my R. SI joint is ⅔ fused and my L. is starting now too. I also have disc degeneration at L4-5 which is...reactions1reply
Getting out of bed is excruciating. Anyone have ideas? It’s an hour plus before I stop hurting....reactions1reply
Active 7 days agoMarijuana for pain ...Does anyone know what strains of marijuana is best for pain...reactions7repliesCommunity SupportMedical Marijuana
What I Wish Someone Told Me When I Was Diagnosed With AS...The scariest and most confusing time of my life was when I was diagnosed with ankylosing spondylitis. A condition with a long and spooky-sounding name was thrust on me, and...reactions11comments
How to ask for breakthrough pain meds...I’ve been on my current meds for several years. However I find it doesn’t last the entire time (6 hours) and for the first time I’m running out of meds...reactions6replies
