Active 7 days agoWalking advice for AS...Hi everyone I did mention I had started doing some walking a month ago to try an help things, I live in...reactions4repliesAnkylosing SpondylitisAlternative TreatmentFlares
Sleep ...When I sleep, I feel like it’s not a restful sleep. I can hear everything going on around me. Sometimes I have...reactions2replies
Anti-inflammatory Lifestyle...I am now over 10 weeks into an anti-inflammatory diet to manage my axial spondyloarthritis, and it truly is a lifestyle. On...reactions1comment
Living with AxSpA in the UK...My symptoms first started years ago, but I thought it was just back or disc problems. Then about 5 or 6 years...reactions2comments
Navigating Life Without a Map...Help Please...I was diagnosed in February 2017, and since then, I have been lucky. After Humira and Embrel didn't work, I finally found...reactionscomments
Even the Healer Gets Boils...Hello, I am both a patient and a doctor by profession. Lately, I’ve been hearing the saying "The cobbler’s children go barefoot"...reactionscomments
Alternative Treatments For Ankylosing Spondylitis Relief...I am so grateful for my ankylosing spondylitis medication. It has successfully reduced many of my symptoms and helped me get a...reactionscomments
Neck pain, hard time sleeping... Advice??...Long story short... 2025 has been the worst year, I think... of my life. Never saying "This is going to be my...reactions7repliesAnkylosing SpondylitisCommunity SupportSleep
Hyrimoz - GERD Increase ...Anyone else notice crazy heartburn and burping after Hyrimoz injection? I have GERD and it's not normally this bad. I take meds...reactions7repliesNon-Radiographic Axial SpondyloarthritisSide EffectsTreatment
What helped after spine fusion surgery?...I have been dealing with two slipped discs since March. It has finally come down to fusion between L4 - L5 and...reactions3replies
Managing anxiety around starting a biologic ...Hi, I am 29 years old and was diagnosed 5 years ago with Axial spondyloarthritis and was managing quite well on an...reactions1replyAxial Spondyloarthritis CopingSide Effects
My Chart & other electronic communications...How do you feel about communicating with your doctor with MyChart or similar computer based platforms? Does it make things easier on...reactionsreplies
Reflecting on Disability Pride Month as a Person With AS...July was Disability Pride Month, which I had never heard of before I was diagnosed with ankylosing spondylitis. Now, I really look...reactionscomments
Am I able to fly, I’m planning to go on holiday next month....Hello, I was diagnosed with AS 18 months ago. I’ve been planning to go on holiday for a while now and I...reactions1replyAxial Spondyloarthritis
Struggling without the medication...I recently had to stop taking my immunosuppressant. It's only been three days and I feel like I'm not going to make...reactions1replyAnkylosing SpondylitisVentingCoping
How to tell if it’s AS/ fibromyalgia or Mechanical back pain.....How to tell if it’s AS/ fibromyalgia or Mechanical back pain. The differences in pain and inflammation and discomfort.? For the last...reactions4repliesFlare ManagementAnkylosing SpondylitisComorbidities
How old were you when you received your diagnosis? How did it make you feel? ...Hello Everyone! My name is Arianna, I’m a 24 year old woman who was very recently diagnosed with AS. I’d like to...reactions2repliesAnkylosing SpondylitisCommunity Support
Enthesitis Flares ...I have a lot of lower body flares and currently taking Remicade...waiting for it to kick in. Has anyone found immobilization helpful...reactions9repliesAnkylosing SpondylitisFlare ManagementFlares
I'm 99% sure I've had this since a teenager!...🥲🥲🥲🥲🥲🥲 I was recently diagnosed with ankylosing spondylitis at the age of 50 (I'm 51 now), and looking back at my life...reactions1replyFatigue Newly DiagnosedRadiographic Axial Spondyloarthritis
Ankey losing spondylitis treatment ...Hey ankey losing spondylitis has treatment in ayurveda. It's my personal experience. I had it when I was teen. At age of...reactions2replies