4 Ways to Overcome Painsomnia...Insomnia, or the inability to get to sleep or stay asleep, affects millions of people worldwide. For many, chronic pain is a significant contributor to their insomnia. When you're in...Reactions0reactionsComments0 comments
Active yesterdayWhat are you thankful for?...Even amidst the challenges posed by axSpa, there remain compelling reasons to be thankful. What are you thankful for?...Reactions0reactionsComments0 repliesCopingCommunity SupportMental Health
Active todayBurning sensation ...Hi. Im new to this group. I have burning sensations all over my legs and arms. My rheumatologist just dismisses me. Does anyone else experience this?...Reactions0reactionsComments1 repliesAxial Spondyloarthritis
Taking Steps To Make Life With AS Easier...My planning and organization skills have always left a lot to be desired. I often find myself going on holiday with zero plans on what I am going to do...Reactions0reactionsComments0 comments
Pain on walking...Hi everyone. I am new here! Only formally diagnosed yesterday, after at least 7 years of being dismissed. I am laid wide awake uncomfortable in bed and questioning my diagnosis...Reactions0reactionsComments5 repliesAxial Spondyloarthritis
How Axial Spondyloarthritis Led Me to My Career...When I was 18, I was only one year into my university degree and nowhere near knowing what I wanted to “do with the rest of my life.” I was...Reactions0reactionsComments1 comments
Pain Level...When asked, “On a scale of one to ten…” We have all heard that many times. However, that’s hard to answer. I was diagnosed in 1978 and have lived with...Reactions0reactionsComments1 repliesTips & AdviceCopingMisunderstood
My Experience With Injectable and Infusion Biologics...I’ve been on biologic drugs for my ankylosing spondylitis for 6 years now. I’ve been on 4, actually. Inflectra (infusion), Humira (injection), Cosentyx (injection), and Remicade (infusion). Now that I’ve...Reactions0reactionsComments2 comments
What is the scariest symptom or complications of axSpa?...Getting an axSpa diagnosis and experiencing the symptoms can be truly frightening. In your opinion, what is the scariest symptom or complication of axSpa?...Reactions0reactionsComments24 repliesSymptomsAxial Spondyloarthritis Ankylosing Spondylitis
Coping With Others’ Judgments and Emerging as We Are...We recently moved into a new community. We've been in our new home for over a year now. Through healing, there's an urge to connect with family, friends, and with...Reactions0reactionsComments7 comments
The Differences Between Injectable and Infusion Biologics for AxSpA...Axial spondyloarthritis (axSpA) is a type of inflammatory arthritis that mainly affects the spine and pelvic joints. Biologics – medicines made from living organisms – can be a powerful treatment...Reactions0reactionsComments0 comments
Injection v Infusion...My doctor and I are discussing switching from my Cosentyx injection to a monthly infusion. We believe the “one dose fits all” of the injections may be too harsh on...Reactions0reactionsComments2 repliesAxial Spondyloarthritis Ankylosing SpondylitisTreatment
My Experience of Trying Acupuncture For My AS...I’ve been receiving care from a chronic pain clinic, and a few months ago they offered me acupuncture. I had a telephone consultation with the acupuncture service to check I...Reactions0reactionsComments8 comments
My Biologic Keeps My Flares Away...I got a reminder this summer about how effective my biologic is at keeping my flares at bay. To give a bit of context to this story, I have been...Reactions0reactionsComments1 comments
It Finally Happened: I Fractured My Spine...I spent about half a year thinking I was experiencing a recurrent, terrible axial spondyloarthritis (AxSpA) flare-up only to learn that I had, in fact, a spinal fracture (spondylolysis). The...Reactions0reactionsComments4 comments
Ankylosing Spondylitis or lung cancer?...Hi all, I have just joined this forum because my dad is having some tests at the hospital. A couple of weeks ago, he went for a PET CT, arranged...Reactions0reactionsComments1 replies
Insurance is Crucial for Patients With AxSpA...I was informed I had a gene mutation a few months ago that could contribute to more severe health complications down the line. After speaking with my healthcare team, we...Reactions0reactionsComments2 comments
Handwriting is hetting horribble...As my back and shoulders curve, I have noticed that my handwriting is getting worse and worse. Has anyone else experienced this?...Reactions0reactionsComments2 repliesSymptoms
Bracing...My back is starting to curve more than I expected. In one of the articles I read, using a brace may help slow down progression of the shoulders. Has anyone...Reactions0reactionsComments14 repliesSymptomsAssistive Devices
The Never Ending Flare...I'm in another flare (again). How long will this one last? The days have passed so fast. I forget again what normal feels like. My days are high in pain...Reactions0reactionsComments3 comments
