The "Flu-mira"...It has been more than a year since I started treating my ankylosing spondylitis with Humira. This treatment has been life-changing. Even though I still might get some rigidity or...reactions1comment
An article talking about COVID risk and AS...Ok so im sure many of you read that report that came out saying people with autoimmune conditions such as RA are at a significantly higher chance of getting serious...reactions3replies
Lost and full of questions...Hi everyone I come here for the 1st time I’m a 28 years old woman who was diagnosed with AS in france in 2011 I don’t have hlb-27 or show...reactions3repliesDepressionDiagnosis
3 Journaling Prompts For AS Self-Care...When I’m really down, I tend to turn toward writing. There’s something about putting pen to page, or fingers to keyboard, that alchemizes the experience of emotion. It gives it...reactions10comments
My Experience With Switching Biologics...I started biologics in July of 2020, a nerve-wracking experience for me. I was on Cimzia for 3 months, I did not have a pleasant experience with Cimzia. I wrote articles about this that you can read. I...reactions5comments
Jamie Boder...Jamie Boder experienced symptoms of AS from his early teens and was diagnosed at 18 along with Crohn’s Disease. The dark night of the soul. Feeling hopeless, lost, and fearful...
My Third Of Many COVID Jabs?...Last Thursday I was lucky enough to get my third Pfizer vaccination to protect me from this pesky coronavirus that doesn’t seem to be leaving us anytime soon. This COVID...reactions2comments
I Cherish My Precious Attention...With AxSpa we can experience brain fog, difficulty to stay focused, lack of attention, and short attention span. That is the kind of thing that strikes me the most with...reactions8comments
What Brain Fog Looks Like for Me...Do you ever struggle with remembering where you put things, forming complete thoughts, or even remembering what you were thinking about doing 2 minutes ago and now you’re standing in...reactions21comments
My AxSpA Weatherman...It’s raining again, I think to myself. I peek out the window and sure enough, there’s a downpour. I don’t need to see rain in the forecast, I can feel...reactions3comments
5 Things That Make Shopping Easier...Shopping is not my favorite thing. It was kind of fun before arthritis, but these days it’s just something that I have to get done. It’s the classic trickster’s trap...reactions6comments
My Experience with Ontario Disability (ODSP)...Right before Covid hit I had made the hard decision to apply for Ontario Disability (ODSP) and quit my job. I had been considering it for months as my symptoms...reactions2comments
Any Advice For Applying For Disability?...Hey guys! I have a phone appointment booked this Friday to discuss my application for PIP, which is the UK's version of disability support. When I was diagnosed 3 years...reactions14repliesInsurance & DisabilityTips & Advice
Soothing tricks and habits?...I attended a lovely gathering online last night, a remote version of Ceilidhs (Scottish/ Irish social tradition). We listen to few turns of tunes, stories, songs or poems, then we...reactions4repliesCopingMental HealthTips & Advice
Acupuncture ...Just curious about people's experience with continued acupuncture treatment . It has given me my life back and wanting so see how many have tried it and stuck with it....reactions17replies
All Wins Are Big Wins...One of the most frustrating things that happens when living with AS is the tendency to judge ourselves against our pre-diagnosis selves or others who live without AS. I have certainly...reactions2comments
Write It Down...I have always wanted to be a writer. Secretly. Secretly, because the world I grew up in didn’t have writers in it. Or writers didn’t come from or inhabit our...reactions10comments
My COVID-19 Booster Vaccine Experience...I was supposed to get my third Covid vaccine on the 9th of October. I postponed it as I was feeling so unwell from an awful flare. This flare has been going...reactions1comment
First Event Going Out With AxSpa...It has been 2 and a half years of being on sick leave. I got lucky in a way, as my diagnosis happened right before the pandemic. As Covid came...reactions2comments
A Spoonie Thanksgiving...As a London boy, my knowledge of Thanksgiving is very limited and mostly stolen from episodes of Friends which I used to watch as a teen. However, from what I...reactions10comments
