My COVID-19 Booster Vaccine Experience...I was supposed to get my third Covid vaccine on the 9th of October. I postponed it as I was feeling so unwell...reactions1comment
First Event Going Out With AxSpa...It has been 2 and a half years of being on sick leave. I got lucky in a way, as my diagnosis...reactions2comments
A Spoonie Thanksgiving...As a London boy, my knowledge of Thanksgiving is very limited and mostly stolen from episodes of Friends which I used to...reactions10comments
Exercise pain...Does anyone experience pain when doing simple yoga moves? I am finding it very painful in the lower back when raising my...reactions5replies
What Helps Me Get Through My Flares...Getting my diagnosis was the easy part. On the other hand, getting through flares, that was a different story. My doctors never...reactionscomments
The Struggle to Maintain Friendships with Chronic Fatigue...Building connections with others is one of the most special components of the human experience. Our connection, bonds, and memories with those...reactions5comments
The Art of At-Home Massage...Light up some candles. Get the aromatherapy going. Put on some soothing music. It's time for an at-home massage. At least, that's...reactions2comments
Learning to Slow Down with Ankylosing Spondylitis...For once, I haven't had constant flares, I think it has to do w/ my left hip replacement in July of this...reactions5comments
The Upside of Getting a Diagnosis...The night I found out I had AS is permanently imprinted on my mind. I was working late supervising a new team...reactions2comments
There’s No "One Size Fits All" With Axial Spondyloarthritis...If you and I were to sit down and compare notes about our health we would probably have much in common. I’m...reactions3comments
What's In My AxSpa Toolbox?...Ever since I learned of my axial spondyloarthritis diagnosis, I began to gather tools to add to my coping toolbox! AxSpa can...reactions2comments
Dynamic Disability Means I Get To Define My Experience...For so long, using the term "disabled" to describe myself felt so it’s off-limits to me. It still does. Unless my AS...reactions4comments
My Chronic World Continues...They said to think more positive. They said tomorrow will be a better day. They said try another treatment plan it might...reactions1comment
I Got Scoped. Twice! ...My 2021 included a personal medical safari through hematology to treat a life-threatening anemia, gastroenterology to find the source, and close monitoring...reactions1comment
AS & Covid Vaccines...Hi Everyone, I am new to this forum. I was diagnosed with AS when I was 28 (now 44). I had a...reactions2repliesFlares Side EffectsDiet & Nutrition
How Do You Spend Your Weekends?...After a long tiring week, us with chronic illness probably welcome a 2 day break more than most. I was wondering what...reactions20repliesTips & Advice
Do I or Don't I Dilemma? Newly diagnosed....I'm a 52 yr old 'healthy' woman, with controlled asthma and migraine/cervicogenic headaches. My professional background is biomedical research/clinical trials. After 10...reactions6repliesNewly Diagnosed DiagnosisHealthcare Team
A Letter For Every Time I Feel Like Giving Up...Dear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I...reactions2comments
Do I Need a Colonoscopy?...I had my first colonoscopy in 2021 due to a life-threatening anemia, unexplained fatigue, weight loss, and abdominal pain. Most cultures have...reactions7comments
My Balance Between Self-Discipline and Self-Deprecation...There is a very fine line between having good self-discipline and striving to live a perfect life. Towing that line has had...reactions3comments
