Advocates Sharing With Advocates: René and James Chat About a "New Normal"...In my last article I interviewed Health Union advocate James Hollens. This is the continuation of that interview. Because we all have a different journey with our disease I think...Reactions0reactionsComments3 comments
AS Friendly Team Sports?...I've been thinking lately that I need to pick up a new hobby. Ideally I would like it to be a source of exercise too but I'm not quite sure...Reactions0reactionsComments4 repliesExerciseTips & Advice
Diets that help AS symptoms ...Has anyone heard of the carnivore diet helping AS? My husband read an article about it and was mad when I didn’t try it. He said he thought I would...Reactions0reactionsComments4 repliesDiet & Nutrition
Who I Was Before AxSpa Is Very Different Than Who I Am Now...Before getting diagnosed, I was always an "on-the-go" kind of person. I used to love to go out. I hated being home, all day long. When I mean I loved...Reactions0reactionsComments2 comments
When You Feel No Pain...There are a few times when I feel almost no pain. First, when I’m very sick, like with an infection of some sort, I tend to experience a pause in...Reactions0reactionsComments6 comments
Time Spent Managing My Health: An Investment That Comes With a Price...I recall filling a survey on this website and answering a question about the amount of time I spend managing my condition. That made me realize how much time I...Reactions0reactionsComments4 comments
A Trip Away With an Uncomfortable Bed...Since I was about 10 years old, every summer I would go on a holiday with my mam, my aunt and my grandparents. It was our tradition. Sometimes we would even...Reactions0reactionsComments11 comments
We Should Collaborate With Our Doctors...Growing up, I got it into my head that doctors were akin to authority figures or bosses. What they said was law — and we’d have to obet. After all...Reactions0reactionsComments3 comments
Things I Wish I Was Told When Getting Diagnosed with AS...Getting diagnosed with AS really young left me growing up not being fully aware of what it meant to live a life of autoimmunity. At that age, most of what...Reactions0reactionsComments4 comments
COVID-19 Vaccine And Flare-Ups...As someone living with AxSpA, I've had several flare-ups in my life. Some last for a couple of days, others last for weeks or months. They also vary in intensity...Reactions0reactionsComments5 comments
The Simple Things...I’ve been thinking about all the things in my life that help me stay positive and happy. Happiness is tough to pin down. I’m sure I read somewhere that most...Reactions0reactionsComments6 comments
I Don't Like This Either!...Comedian John Mulaney once said, when talking about his bad driving, “I hear you honking, and I also don’t want me to be doing what I’m doing!” As AxSpA patients...Reactions0reactionsComments3 comments
What the AS Community Means to Me...When I was first diagnosed with AS, I felt like I was drowning in terror and information overload that I’d acquired by going down the internet rabbit hole. My partner...Reactions0reactionsComments2 comments
Treatment...I was diaagnosed with AS about 7 years ago but only vision effected. I have been taking Remicaid Infusions for about 4 to 6 years once a month. In addition...Reactions0reactionsComments4 replies
New to AS...Diagnosed with AS in March of this year started the injection of adalimumab every two weeks having some horrible side effects for a couple of days after injection any one...Reactions0reactionsComments3 comments
Feelings Of a Locked Back...I look back and value the days of my youth when I took my healthy back for granted. I was told by a referring specialist I had spondylitis of the...Reactions0reactionsComments1 comments
How to Explain to Friends and Family...I’m sure I’m not alone in this but when I was diagnosed with AS I had no clue what it was or meant and to be honest I still have...Reactions0reactionsComments5 comments
Throwaway Society...As someone who lives with a chronic illness, I am constantly battling the ever-present challenges of both the disease and life, in general, the best that I can. Like many...Reactions0reactionsComments3 comments
Myofacial Release...Hello to All My rheumatologist has referred me to a massage therapist for Myofascial Release. Does anyone have experience with this treatment and what were the results? Thanks in advance....Reactions0reactionsComments3 repliesAlternative Treatment
A New Life...I was diagnosed with AS in 1999 and told I’d never work again. I went on full benefits – I was even allowed to apply for a car. I felt...Reactions0reactionsComments11 comments