Exercise pain...Does anyone experience pain when doing simple yoga moves? I am finding it very painful in the lower back when raising my legs behind me when lying on my stomach...reactions5replies
What Helps Me Get Through My Flares...Getting my diagnosis was the easy part. On the other hand, getting through flares, that was a different story. My doctors never explained to me anything about what flares were...reactionscomments
The Struggle to Maintain Friendships with Chronic Fatigue...Building connections with others is one of the most special components of the human experience. Our connection, bonds, and memories with those who understand us is what makes life sparkle...reactions5comments
The Art of At-Home Massage...Light up some candles. Get the aromatherapy going. Put on some soothing music. It's time for an at-home massage. At least, that's what it's like when I set up an...reactions2comments
Learning to Slow Down with Ankylosing Spondylitis...For once, I haven't had constant flares, I think it has to do w/ my left hip replacement in July of this year. I thought, "Hey, I could probably do...reactions5comments
The Upside of Getting a Diagnosis...The night I found out I had AS is permanently imprinted on my mind. I was working late supervising a new team member and saw the doctor’s number come up...reactions2comments
There’s No "One Size Fits All" With Axial Spondyloarthritis...If you and I were to sit down and compare notes about our health we would probably have much in common. I’m guessing we both have either a confirmed or...reactions3comments
What's In My AxSpa Toolbox?...Ever since I learned of my axial spondyloarthritis diagnosis, I began to gather tools to add to my coping toolbox! AxSpa can really take a toll on our mental and...reactions2comments
Dynamic Disability Means I Get To Define My Experience...For so long, using the term "disabled" to describe myself felt so it’s off-limits to me. It still does. Unless my AS severely worsens, it always will. So I don't...reactions4comments
My Chronic World Continues...They said to think more positive. They said tomorrow will be a better day. They said try another treatment plan it might help, but we have to wait and see...reactions1comment
I Got Scoped. Twice! ...My 2021 included a personal medical safari through hematology to treat a life-threatening anemia, gastroenterology to find the source, and close monitoring with my GP to manage it all. The...reactions1comment
AS & Covid Vaccines...Hi Everyone, I am new to this forum. I was diagnosed with AS when I was 28 (now 44). I had a really bad year when I was diagnosed, to...reactions2repliesSide EffectsDiet & NutritionFlares
How Do You Spend Your Weekends?...After a long tiring week, us with chronic illness probably welcome a 2 day break more than most. I was wondering what you guys do at the weekend to recharge...reactions20repliesTips & Advice
Do I or Don't I Dilemma? Newly diagnosed....I'm a 52 yr old 'healthy' woman, with controlled asthma and migraine/cervicogenic headaches. My professional background is biomedical research/clinical trials. After 10 years of back and neck pain and various...reactions6repliesDiagnosisHealthcare TeamNewly Diagnosed
A Letter For Every Time I Feel Like Giving Up...Dear me, AxSpa warrior: I know you were so excited, that you were having some good days and on a roll. I know you started making plans for the following...reactions2comments
Do I Need a Colonoscopy?...I had my first colonoscopy in 2021 due to a life-threatening anemia, unexplained fatigue, weight loss, and abdominal pain. Most cultures have some taboos around this area, making it an...reactions7comments
My Balance Between Self-Discipline and Self-Deprecation...There is a very fine line between having good self-discipline and striving to live a perfect life. Towing that line has had a profound impact on my mental health and...reactions3comments
No More Adventures with My Dogs...Meet Maggie and Charlie. Maggie is a 5-year-old Basset Hound and Charlie is a 4-year-old mix between a German Shepard and a Huskey. They are great loyal dogs with lots of character. They...reactions5comments
The 2 Types of Grief and How They Affect AS...Grief. We all know what grief is, but did you know you can experience grief when you have a chronic illness? I didn’t at first, but when I realized how...reactions4comments
AS and Piriformis Syndrome...Has anyone noticed any correlation between Ankylosing Spondylitis and Piriformis Syndrome? I am on day 41 of an AS flare. The length of this flare is highly unusual for me...reactions9repliesTreatmentSymptomsFlares
