Another Year Older With AxSpaAnother year has passed and I made it through. Turning 36 years old, another year of AxSpa by my side. I thought by now things would have been a bit...Reactions0reactionsComments4 comments
Keeping Warm and Cozy With ASThe winter months were always my favorite time of the year as a child, not because I enjoy the cold. I enjoyed the winter because it was almost guaranteed that...Reactions0reactionsComments2 comments
Is Anyone Having Success With Biologics?I have had back pain since I was 16 years old. When in my early twenties I went to Orthopedic MD who took an xray on my upper back and...Reactions0reactionsComments7 comments
2019 My DiagnosisI have always had back problems and had some injuries to my back in my life that my body was telling me was more serious than what the doctors were...Reactions0reactionsComments2 comments
The Pain is UnbearableHi everyone, I apologize for the long post in advance it's the first time I've ever posted anything like this on any kind of website. I have just signed up...Reactions0reactionsComments2 comments
AS Ruined My Life. Now trying to get it back together.I'm not a native English speaker. Please forgive my mistakes! I've been mistreated so many times with "professional" help, so I would like some advice from people that are going...Reactions0reactionsComments3 comments
Ankylosing Spondylitis: Chronic Pain and Chronic FatigueI had a few symptoms before I even knew I had AS. All these things that led up to where I currently am, doctors not knowing for the longest time...Reactions0reactionsComments3 comments
All I Want from Santa....(And Doctors)I loved my friends, I loved my job, I loved life. I worked for our state, Alaska, for almost 17 years. I found my husband at this job, and also...Reactions0reactionsComments1 comments
This Pain SucksMy pain started when I hurt my back working at a nursing home. The doctors told me that I have had it for a while. My back would get sore...Reactions0reactionsComments1 comments
My Journey and How I've Managed to CopeThe day after Superstorm Sandy, I twisted my knee. A few days later it had gotten worse, so went to the doctor. Sent to a ortho, and April 19, 2013...Reactions0reactionsComments2 comments
I Was A Mystery PatientI was my doctor's mystery patient for a total of seventeen months or longer. Here is my story before I got diagnosed. In April 2015, the lower right side of...Reactions0reactionsComments0 comments
Diagnosed and can’t go back to doctorI have been diagnosed, but due to loss of insurance I can’t go back to the doctor, I can’t afford the meds nor can I get a prescription. I have...Reactions0reactionsComments1 comments
It Explained Everything!I graduated from hygiene school in 2012, and within four years I needed bilateral carpal tunnel release surgery. I was also having back/hip/buttock pain and was waking up so stiff...Reactions0reactionsComments0 comments
What Is AS Like? Well...I was diagnosed about 3 years ago, after my pain management doctor couldn't help me with my pain anymore. So he referred me to a rheumatologist. I went to see...Reactions0reactionsComments1 comments
It’s Taking Forever To Get A Diagnosis!I’m 50 now. I’ve been having weird pains for about 26 years with random explanations from different doctors. "You’re overweight" (I was not that overweight at the time). "You need...Reactions0reactionsComments0 comments
AS and Everything Else!I was diagnosed with ankylosing spondylitis in 1980. I was 18, I had excruciating low back pain to the point I could not walk sometimes. I was having trouble working...Reactions0reactionsComments1 comments
Undiagnosed and pain getting worse.I have had serious back and hip pain for several years. My pain management doctor said I have arthritis. The pain is getting worse and sometimes I can hardly get...Reactions0reactionsComments1 comments
2nd Generation ASI grew up with a dad who had an extreme case of AS. It was the 60’s and nobody knew what was wrong. For years he chased cures. Endured barbaric...Reactions0reactionsComments0 comments
My Life Changed Seemingly OvernightI don't tell my AS story very often. It seems so long to me and I never know if anybody really wants to hear it considering there are so many...Reactions0reactionsComments0 comments
Just The BeginningMy dad was struggling with pain for twenty years before he was diagnosed. Luckily, as a triathlete, he was somewhat managing his pain without ever knowing anything about the disease...Reactions0reactionsComments0 comments
