caret icon Back to all discussions

Anyone Doing Remicade Infusions

Hey All !
Hope everyone is feeling well and staying safe ?
Rheumatologist has once again changed meds. I will be starting Remicade IV infusions within a week or so.
I was given the option to go into the hospital or have them done at home. I choose to have them done at my house.
So I was looking for input from anyone who has had this treatment .
If there is anything that I would need to know?
Any info about side effects?
Does it wear you down like methotrexate?
I have been on Enbrel ,Cocentyx & Humaria . They were going to put me on Taltz but Medicaid won't pay for it ?
But I guess they will pay for this even though it's a much more expensive treatment..


If anyone can give me any input that would be awesome. If not I will post my experience..
Have a awesome day/night
😊

  1. I am curious how your infusion therapy is going? I just started the renflexis infusions.

    1. Thanks for posting! 😀

      It sounds like you're interested in what Remicade is, how it works, and its side effects. I'd recommend this article, https://ankylosingspondylitis.net/remicade.

      If you want to read about lived experienced with Remicade, Steff's 6 Month Update on Humira provides great insight. https://ankylosingspondylitis.net/living/humira-update

      Hope that's a little helpful!

      - Cody (Team Member)


      1. I used remicaide for six years both at home and at an infusion center. I thought the medication was wonderful and had it not stopped working I would gladly still be using it.


        It did make me sleepy for that evening so I tried to do it on Friday.

        1. hi thank you for your input. I was thinking it may wear you out so the Friday thing might not be a bad idea 2 days to recover.

      Please read our rules before posting.