March 17, 2021
We are all different. One thing I've learned about AxSpa is there is a lot of trial and error with finding what works for you. Have you tried more than one biologic? If so, how many have you tried and tested? How long did you trial them for? and how long until you saw results with the biologic that is right for you?
4 days ago
First I was on Embrel which worked well for me but I had a skin allergy to the injection. I could feel the benefit quite quickly by taking this one as you inject weekly, but I had to stop because of the allergy reaction to it. After few weeks of Embrel, I switched to Humira and never looked back. It was also effective quickly I think, within a few weeks. I feel very lucky to have this medication which still works six years later.
I am glad you are taking a biologic which sounds effective for you.
March 17, 2021
Biologics are definitely a trial-and-error medication. It has taken me approximately 4 years to get results. I have tried Humira, Enbrel, and Simponi Aria. The first two didn't work at all and I used the Humira for a total of 6 months and Enbrel 3 months to see if it would kick in and ease my pain. But nothing, no help whatsoever. I really questioned my AS diagnosis, as nothing was helping. But I was encouraged to try the next biologic. Simponi Aria infusion every 8 weeks did help, but only got 4-6 weeks of relief - so was on a roller coaster of pain and flares. I did use it for about a year and a half. I started my 4th biologic, Remicade infusions, last year (2019/2020) and it is the best so far. I get a loading dose of 5 mg/kg IV given at 0, 2, and 6 weeks and then every 6 weeks at my rheumatologist infusion center. So far, much better energy, kicking my fatigue down a notch or two, and the pain has decreased in all my joints. It's not gone, but lower than without treatment. Definitely speak with your physician if you feel you are not adequately controlled. Having a good working relationship with him/her is essential to your quality of treatment.
March 29, 2021
I'm on my second biologic now, and it has given me my life back. I was on Cimzia first, I saw little to no results with this, and I had some side effects. I am now on Cosentyx and I feel like it is really working for me, thankfully!
7 days ago