Brain Fog is an issue!
Now almost ten years into AS, people around me still do not understand Brain Fog as something many of us grapple with.
Recently our daughter and her husband visited us. I had bought two small speakers to pair with my playlist on my phone so I could listen to music in my art studio. Though I attempted to pair them with my phone, I was out of my depth. Just call me "Boomer"!
Our son-in-law worked with them and said 'Done!" Alrighty then. Today I tried to pair them with my phone playlist. I was completely demoralized. I have forgotten the next steps. Already.
It seems that Brain Fog is a real issue or is it because I am a Boomer? These kids wiz through the mundane issues and I am at a loss. I put the speakers away. . Maybe tomorrow or maybe never. I feel so defeated. Do others in our group experience Brain Fog? If patience is a virtue, I've lost mine.
Another visit to rheumatologist,
New diagnosis of ENTHESITIS and probable SJOGRENS SYNDROME after labs. Methotrexate and NSAIDS are the treatmentt. This is on top of everything else, diagnostically, that I'm dealing with. Is this a pity party? Maybe for about a millisecond or so. I have a great support system in my husband and great best friend. I am a retired Nurse Practitioner, so I'm fully aware of the strategies to deal with these disorders. However, knowing this information doesn't take away the pain or inability to perform ADL without much difficulty. I'm about to turn 70 and I wonder how I'll be in a couple years. As I'm typing, I can not help but think there are other people out there experiencing the same pain and frustration.
I ramble on, my mind is disorganized. Will I get worse? I already no the answer to that question.
Everyone keep your chin up. One
minute at a time. If you have a good day, reveal in it. Smile when you see a beautiful sunrise
or sunset. If it's a bad day, soak in the tub, swim, sunbath (safely), nap, eat a tv dinner (forget cooking), grocery shop another day. Do what makes YOU feel better. You just have to do what you can when you can.
Thank you AS forum for a place to vent and share with everyone else. My thoughts are with everyone that has been diagnosed with an autoimmune disorder. It's rough going but it is doable. Happy trails.
- such a good vibe. Thank you for sharing. Self-care and management are vital when managing chronic illness/es. Do what you can - great suggestion. It's okay if today you sleep more than you are awake. Take care of yourselves today friends. We appreciate you here in the axial spondyloarthritis community. Rebecca (team member) 
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Adding an additional diagnosis (or two) can certainly be a bit daunting.
Enthesitis is actually an early and common symptom of axSpA, while Sjogren’s syndrome is quite commonly diagnosed along side ankylosing spondylitis.
Many in this community have shared similar diagnostic journeys. I hope it provides a small bit of comfort knowing you are not alone.
We are so grateful you are part of this community and truly appreciate your kind words and wonderful perspective.
All my best, Doreen (Team Member)
Yes
- just ... ugh, right? Hoping you find a little bit of energy to get some things done. Brain fog is so draining. How are you today? Rebecca (team member)
no
Glad to hear the brain fog issue has not plagued you as you treat spondyloarthritis. It can be difficult to do anything when it hits. You feel so tired, so defeated trying to get anything accomplished. Send us some of your energy. We'd so appreciate it. Thanks for sharing - Rebecca (team member)
Absolutely.
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May it provide a bit of comfort knowing you are not alone.
Many in this community feel the same.
~Doreen (Team Member)
