Dismissive doctors
Has anyone else tried to explain the severity of symptoms like severe fatigue and pain to their doctor, and were having trouble being able to work, and were met with a dismissive doctor who's advice is to stretch and sleep longer? Or something along those lines. If so, i would love to hear how your doctors have left you feeling unheard.
Yes! When I transferred to a new rheumatologist after my first one retired! And at the very beginning of my pain, my PCP completely gaslighted me, as if my pain was in my head.
Things are somewhat better. The last Rheumatologist died almost 2years ago. The practice FINALLY has new doctors and Ihave an appointment for 7/15. We’ll see what happens then.I hope the new rheumatologists are better to work with. Before you go, you might be interested in reading this article about how to advocate for yourself at the doctor's. Let us know how the visit goes for you. Warmly, Kathy (Team member)
YES
You shouldn't have to deal with that. How did you handle having a doctor who dismissed your symptoms? -Latoya (Team Member)
Absolutely yes
I am so sorry you are going through this! Medical gaslighting seems to be too common for people living with AS. How do you respond when your doctors dismiss what you are telling them? Warmly, Kathy (Team member)
Even when my symptoms were, SOB, severe pain and although some burning.calms the
not fun for everything you mentioned. Sorry to hear you have to go through these horrible symptoms. Have you been able to find a treatment or something that helps you get through these?
Sending love,
Nicky (Team Member)
