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Enthesitis

Where are your painful enthesitis sites?

  1. What a great question - before I began Xeljanz I went through years of painful full-body ligament and tendon pain, even trying multiple meds and treatments - nothing helped ( https://axialspondyloarthritis.net/living/finally-finding-relief ). I thought it would never end. They felt like they had no stretch to them and burned when I did use them. The most painful areas were the tendons from my elbows to fingers, as well as from my knees to toes. At times shoulders to elbows and hips to knees also. Dealing with this made picking things up and chores/tasks as well as walking extremely difficult - eventually becoming bedbound most of the time. My spine was the other area that was extremely painful - mostly at my rib area and cervical spine - there was so much pain bending over picking things up or cleaning the tub or floor or windows. What a disease this is! It robs you of so much. What are some areas that are extremely pain sites you are dealing with? Hoping you are managing well enough and your pain is controlled. Rebecca (comm advc)

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