Family history

Hi dear Rebecca
Your very welcome 🙏
Oh no I can’t believe it, how did it happen?
Yes i remember you telling me he is bless him,I hope he gets the MRI soon, he will be away from work for a while.
that is true but sad though, hopefully it be booked for when you’re both up and feeling better.
It’s something to look forward too and always good looking forward to something nice .

It was lovely I really enjoyed it and my husband enjoyed seeing two of his four kids.
I hope you can see your family soon sending you massive hugs 🤗.

Not great that’s all you need and it really does make you feel even worse, I hope the storm is not so bad take care there.
In Northumberland where we are the winds have been up too 96mph never known it that windy, I thought the storms we had before were bad but in Scotland they have a danger to life and Ireland but the south has been ok not windy and no storms.
Right now it’s nearly 5.40 in the evening and winds are 56 so hopefully going down.

Do you think you should buy a heating blanket? I have a heat pad as well.

I am glad your neck and back are slowly improving.
Yes I know having one chronic illness is bad enough but more it’s so much worse, I rang the dentist today and receptionist said the dentist has to do a review in March and then go from there!!! I have to manage like this till then as need three months to heel grrr 😡. I said the denture is hard to wear now as the gums are so bad and cause me ulcers and blisters so have to take it in and out and the teeth at the bottom are spilt and bending and denture there puts more pressure on my bottom gums so have that out, it’s driving me mad I just want to chew something, I have smoothies and blending food but it’s not chewing.
She said he might not take them out but he did to me last year he was.

I hope you have a nice weekend and rest as much as you can and think good thoughts.

A quote out of my cards

“Tomorrow you will be unstoppable”

Take care dear friend.

Sending you warm caring hugs across the pond to you.

Jan

Oh, I like that saying. Reminds me to rest today and tomorrow with be better. I hope you have rested over the weekend. I can't imagine the horrible pain you are going through with your teeth and the ulcers and pain. It's got to be very hard for you. I wouldn't fare very well going through what you are trying to manage.

My son hurt his lower back using the saw to cut open a car at an accident site. He is slowly feeling better but it will take a while to have his back in ship shape condition. I do hope it doesn't impact his employment status. We are just waiting for the MRI. I do hope it's not too serious and he can have PT to ease the pain and strengthen his core so it doesn't happen again. He's normally very healthy.

Not sure I want to spend money on a heating blanket. I do pretty well with the comforter and heavy blanket I have now. My husband is always too hot at night so it would be torture for him. I'll hold off. Not too cold recently. It's been in the 60s degrees F here so getting better.

You better hold onto something if heading out into that windy weather. Gosh! The storms are strong there and to the north of you. Stay safe.

Sending you healing and wellbeing as you try and manage an impossible situation. I'm thinking of you and hope the pain eases. Hugs friend. Rebecca (team member)

Thanks for offering up ideas to help support my energy. It has been hard to come back after surgery. I feel like sleeping 23 out of 24 hours. I know that works against me though and makes it even more difficult to get going. I try to get 8 hours and then get up and move or do chores. I have started walking the dogs again, though I've returned to using an orthopedic boot on my ankle replacement foot and ankle. The swelling is going down while using it. So that's a plus.

I'm not sure how you manage in such a cold weather area. I grew up in Buffalo, NY where it was frigidly cold in the winter with never-ending cold rainy days in the spring. I went to college about 2 hours away and the weather wasn't any better. Before diagnosis, I struggled with the weather and was continuously feeling horrible. So glad we decided to move west. I feel better when warmer and in dry heat. Not sure I'd do well in places like Florida where it is muggy and warm.

Lucy has bounced back and is very energetic. She has so much fear with medical staff - I can't blame her. I can just be there for her to ease her anxiety.

It is warm and clouds are building up today - probably a storm coming in. I'm not feeling too bad yet. But any change in atmospheric pressure is like a bowling ball hitting me. I will nap later which helps. I've not done any other activities such as puzzles or the lot, seeing I have just enough energy for chores. I'm sure I will eventually get back some energy. For now, just healing.

Sending you caring hugs and thoughts of healing - Sounds like you are doing the best you can with what you have available to you. Rebecca (team member)

Hello Rebecca
You’re very welcome, maybe they could help, if you do try them let me know.
It will take time but you’re doing really well that’s what I think.

I don’t sleep that well I find it hard to switch off so I am shattered most of the time as well, I can’t nap I never have and I have tried it doesn’t work, I can be so sleep deprived and still can’t nap.

Take it as easy as you can when walking your dogs.
I am glad the swelling is going down that’s good news.

Northumberland is a lovely place to live but it’s very cold.
I am not from Northumberland I lived about 2 hours away and it was warmer but when I moved here with my daughter in 1996 I did notice a difference but now used to it, Nick though is from Sussex down south and took him years to acclimatise here.
This year though has been the worst, we haven’t even had a summer we had a few weeks one day sunny and next windy,right now it’s so windy and tomorrow it’s 67 MPH crazy even with the sun it’s still been so windy.
I am struggling with this weather as soon it will be autumn and the winter affects me badly as well.
Warmer weather really helps and boosts my vitamin D as I have low vitamin D I take vitamin D supplements but not sure they help.

I am glad Lucy is getting better bless her she has a loving family and that’s what she needs she is lucky to have you.

I hope you don’t have a storm, we have had some bad storms over the years.

atmospheric pressure does effect me too, I have noticed it more recently.

Your doing all the right things and rest and taking it easy is the best way, you will slowly get back to what you were doing.

I am doing what I can do as every day is different I never know what to expect it’s not easy is it.

Sending you warm caring, healing hugs.
Take care

Jan

hello Doreen thank you for your message.
Yes the rheumatologist just doesn’t listen to what I say, I have tried explaining but it goes in one ear and out the other.
Thank you for the link very helpful.
Take care Doreen
Jan

,
That is so frustrating.
Unfortunately, we hear this too often.
I'm including a link that offers some helpful tips on how to prepare for a rheumatologist appointment: https://axialspondyloarthritis.net/living/rheumatologist-preparation
I wish you all the best, Doreen (Team Member)

hello Rebecca
How are you doing? Did I send you a message? I can’t remember, my head seems to full of fluff right now.
Did you have a lovely Valentine’s Day? We had a nice one.
Let me know if I replied to you the other week.
Take care
Jan

Hello! Sorry I didn't jump on sooner. I have been keeping busy with things. I wanted to quickly hop on and write you a message. Our Valentine's Day was nice. It was quiet and relaxing. We stayed in and I made soup and salad for dinner, and we sat and watched a movie. This coming Sunday maybe we'll do something a little more exciting or extravagant. Maybe ... LOL.


The second opinion I had about my lower spine with my past surgeon went well. It was great chatting with him. He is such a personable and understanding physician. I explained why I wanted a second opinion, and we then went over imaging results from my most recent CT and MRI. He stated he would absolutely agree to surgery to help manage this fragile spine I have. I was so appreciative he is still available to me even though it is 3 hours away. I chose surgery. PT would only irritate and aggravate and put me in a flare. I've been dealing with this for years; it is only getting worse. Now a fracture and a slipped vertebrae (spondylolistheses) are seen with radiation of pain throughout hips and legs. I've already had 2 surgeries in this area in the past 5-6 years to help remove the bulging discs and painful squishing of nerve endings. So to stabilize this weak spine, I have scheduled fusion the beginning of April. He will be stabilizing the pars defect (fracture) below the fusion as well. I am not worried. With him, I'm in the best hands.


How have you been lately? How has your February been going? I certainly hope the rashes, adverse effects, and pain are all easing. I would love to hear an update from you and what has been occupying your time. Sending hugs to you on this chilly morning. Warmly - Rebecca (team member)