Have you had a doctor ask, “Did you try taking ibuprofen?”
Hello! I was diagnosed with AS two years ago. My life has done a 180 in every way.
I have never spoken with someone else who also has AS, and a doctor suggested I find a support group or community so I don’t feel so lonely.
So my question is more of an ice breaker. 😁 And for the record, I had two neurosurgeon’s ask me after YEARS of dealing with pain if I had tried ibuprofen for the pain.” 😳🤦🏻♀️
I would also love to hear how your AS is affecting your spine and body specifically. I only have myself to judge AS on, and I would love to know how it affects others. I recently had surgery to have two mobi-C devices inserted between c4/5 & c5/6
Thank you, Rick! Your experience sounds similar to mine. And thank you for referring me to that site. It sounds like it is exactly what I’m looking for. 👍
- So glad you found us! While the SAA is a great resource, I hope you know you found a wonderful support group here, too! Here's a link to read some other stories from members in our group: https://ankylosingspondylitis.net/stories. And here's a link to see what's currently happening in the community: https://ankylosingspondylitis.net/community. Sending vibes for comfort and relief soon! -Anthony (Team Member)
Welcome to the club that none of us want to be part of and cannot leave. We are so glad you found us. Our community is stronger because you found us.As for support groups, you might check out the Spondylitis Association of America (SAA). I will leave the link at the end of my comments.
You asked how AS has impacted my body. Saying this only relates to my experience. for me, it has been isolated to my back and SI joints. I have had a number of surgeries over the years to correct various types of spinal stenosis. It has caused Kyphosis (leaning forward) and significant pain in both SI joints and difficulty with the Achilles heel. \
Ankylosing Spondylitis can also impact organs, chest pain, IBD, and many other issues.
I hope that helps........................... rick
Here is the link I mentioned.
https://spondylitis.org/
