Ali Long
I think its important to highlight that not everyone with AS is HLA-B27 positive. Let me know if you are positive or negative!
Amelie Member
I'm negative and remain undiagnosed, despite a "chronic sacroiliitis" diagnosis at 27 and 20+ years of chronic inflammatory back pain that meets the ASAS diagnostic criteria for Ax-SpA and certainly for Nr-AxSpa. The first rheumatologist told me maybe I had dystonia (nope - symptoms aren't even close to matching), the second said it couldn't be AS because I was seronegative and not a man (eye roll to medical misogyny), and the third diagnosed degenerative disc disease without reviewing any of my recent MRIs which show no disc degeneration whatsoever. In fact, another physician who reviewed my imaging said my discs look like someone in their 20s, not their 50s. Depending on how well your rheumatologist understands the spectrum of spondyloarthropothies, being seronegative can sometimes be a real road block. It certainly has been for me!
Kathy.Smyser Community Admin
CommunityMemberc2b568 Member
my son has the signs he has ankylosing spondylitis that's why his doctor did no longer subjected him to HLA-B27 test, also because its too expensive here in the philippines
Latoya.Juniel Community Admin
Kathy.Smyser Community Admin
Arianna1025 Member
I have a positive HLA-B27. It was actually what raised flags and led to my rheumatology referral. 3 years later I was diagnosed with AS
Latoya.Juniel Community Admin
Kathy.Smyser Community Admin
CommunityMemberd90fac Member
Negative.
Latoya.Juniel Community Admin
Kathy.Smyser Community Admin