Are you diagnosed with AS or AxSpa?
There are 2 types of axSpA: radiographic and non-radiographic.
Radiographic axSpA (r-axSpA or AS)
In radiographic axSpA, inflammation, and bone damage are visible on X-rays. This is most commonly called ankylosing spondylitis (AS).
Non-radiographic axSpA (nr-axSpA)
When inflammation and bone damage are not seen on an X-rays, the condition is called non-radiographic axSpA.
AxSpa
I digress, I did have spondylosis per x-rays in my spine. But the majority of my symptoms are in peripheral areas. My rheumatologist told me I have AxSpA. I've also developed ENTHESITIS. I ended up getting a terrible but sparce rash all over my body. More like red bumps that had gravely waxy content in them. Also blepharitis with pustules instead of hard areas. This disease has presented so strangely in the last 8 months and now I'm starting back on methotrexate. I'm hoping all these symptoms go away ASAP. I'm enthusiastic and positive it will help. Positive mindset always helps everything. Just a note to everyone else, keep your head up, never doubt yourself and your symptoms and never feel guilty about it. Even if other people don't understand you realize what's going on. Smile as much as you can. Sending hugs to everyone
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I love your positive attitude and wonderful perspective!
Here's hoping the methotrexate will make a difference.
Please keep us updated.
Warmly, Doreen (Team Member)
I think I have it. Not diagnosed yet. Getting steroid injections and keep falling down. Had a bad fall 5 years ago and now have bad osteoporosis. It's taking over my body I feel like. My spine is statto curve and I can't hold my back up straight or s
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I'm sorry to hear how challenging it has been for you.
I thought I'd share a few articles on diagnosing and treating AxSpA:
https://axialspondyloarthritis.net/diagnosis and https://axialspondyloarthritis.net/treatment.
Please don't hesitate to reach out anytime.
~Doreen (Team Member)
Yes
I have Ankylosing Spondylitis combined with osteoarthritis, osteoporosis, degenerative disc disease, and Diffuse Idiopathic Skeletal Hyperostosis (D.I.S.H.) formerly called Forestier's disease. Just a mixed up mess! 🤯
thanks for sharing the struggle you deal with daily. It is very complex and challenging to find relief while dealing with comorbidities. I understand as I've got 3 of the 4 you mention. It can be physically and emotionally overpowering. How are you being treated for OA, AS, and DDD? Wishing you better days ahead. Rebecca (community moderator)
