Are you diagnosed with AS or AxSpa?

That sounds incredibly confusing , especially after living with the diagnosis for 3.5 years and still having the same pain. I'm sure it is also extremely frustrating. I truly hope you are able to get some clarity. I know this was a new Rheumatologist and that this is a pain, but maybe even another opinion may be good if you can't seem to figure out anything with this one. Hopefully some community members can chime in as well. This article may also be helpful to take a look at! https://axialspondyloarthritis.net/understand-test-results Sending you all the positive thoughts I possibly can! -Kimberli (Team Member)

Thank you for your suggestion. Unfortunately finding a good rheumatologist in my area is difficult. I have been looking for one for most of the past 10 years or so. I find one and he retires after 2 or 3 years, then I try someone else and they are a bust from the beginning. Then I find a really good one and he dies after 2.5 years. I continued with the practice for another year and they finally found a team that splits their time between 2 locations. The only other thing I can think of is going outside the group of physicians in my PCP’s group. I may have to do that.

Thanks for chiming in! How has your journey with AS been for you? -Latoya (Team Member)

Hi there! Is there something I can help you find on our community's website? Warmly, Kathy (Team member)