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How long did it take for you to be diagnosed?

Let me know below how long it took between your symptoms starting and getting your diagnosis?

I feel very lucky that I was diagnosed within a year of my symptoms starting.

  1. I started with severe back pain at 19. Dr's thought I was 1, faking and 2, crazy because I had no herniated disc (duh) I persisted with Dr's until I found of rheumatologist who checked good the hla b27 marker (which before internet really meant nothing to me) when I hit my mid to late 40'S I first heard spondylarthropathy from another rheumatologist. God Bless her!


    1. Hello Ali
      I think I went undiagnosed for 15 years. It's hard to tell exactly, isn't it? But looking back, the symptoms that have plagued me for more than half of my 63 years, would suggest I probably had it from my mid-twenties.
      Originally, a doctor thought I'd got whiplash. When I explained I hadn't been in a car accident, he said, you must have been. I can still remember laughing at that. How he thought I'd forget a car accident, I'll never know. He was nice enough though - just a bit put out because he couldn't pin down what was wrong with me.
      Go well.
      Steve - Community Advocate.

      1. Hi Ali,
        I was diagnosed less than a year after first seeing my rheumatologist. I first began experiencing symptoms in 2015/2016 and was referred to my rheumatologist in early 2019 and was diagnosed later that year. It only took about 3-4 years for my journey in getting a diagnosis. I feel fortunate as I have heard of it taking many more years for other people to receive the same diagnosis.

        1. Almost 9 years.

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