How long did it take for you to be diagnosed?
Let me know below how long it took between your symptoms starting and getting your diagnosis?
I feel very lucky that I was diagnosed within a year of my symptoms starting.
7 years
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Thanks for chiming in.
I wish it weren't, but that seems all too common in this community.
How are things going today?
~Doreen (Team Member)
Waiting - should be done in 6 weeks
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We'll be thinking of you.
Please keep us updated.
~Doreen (Team Member)
22 years
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That is frustrating to hear.
Do you feel your symptoms were ignored or were you originally misdiagnosed?
~Doreen (Team Member)
- That's quite a long time. I understand as it took many decades to discover I had spondyloarthritis. I hope you are doing well currently. Rebecca (Team member)
I was diagnosed in 1 wk after collapsed at home one dr smart enough to order mri showed everything they fused my neck 4 rods 12 screws later had surgery immediately which in recovery caused my stroke In hospital for 6mths can barly walk they said the as caused the stroke 3yrs later I'm still here only the good die young ill be here 4ever lol 😆
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Oh my goodness, it sounds like you've been through quite a bit.
You certainly have a wonderful perspective.
How are you doing lately?
My best, Doreen (Team Member)I am so sorry to hear that it got to such a debilitating state for you. Recovery can take months to years. I send strength your way and hope healing finds you sooner rather than later. You are in our thoughts. Stay strong. Rebecca (team member)
