August 5, 2021
Let me know below how long it took between your symptoms starting and getting your diagnosis?
I feel very lucky that I was diagnosed within a year of my symptoms starting.
August 18, 2021
Steve Tuffin Moderator
August 16, 2021
I think I went undiagnosed for 15 years. It's hard to tell exactly, isn't it? But looking back, the symptoms that have plagued me for more than half of my 63 years, would suggest I probably had it from my mid-twenties.
Originally, a doctor thought I'd got whiplash. When I explained I hadn't been in a car accident, he said, you must have been. I can still remember laughing at that. How he thought I'd forget a car accident, I'll never know. He was nice enough though - just a bit put out because he couldn't pin down what was wrong with me.
Steve - Community Advocate.
Anna Samson Moderator
August 14, 2021
I was diagnosed less than a year after first seeing my rheumatologist. I first began experiencing symptoms in 2015/2016 and was referred to my rheumatologist in early 2019 and was diagnosed later that year. It only took about 3-4 years for my journey in getting a diagnosis. I feel fortunate as I have heard of it taking many more years for other people to receive the same diagnosis.
August 9, 2021
Almost 9 years.